I have IgG-secreting Lymphoplasmacytic Lymphoma which, although somewhat similar to Waldenstrom's, is even rarer than Waldenstrom's. However, the general treatment of both are the same.

I was scheduled for 6 cycles of Bendamustine & Rituximab chemotherapy; however, only actually completed 5 of the 6 cycles. My 'hematologist/oncologist' team cancelled my cycle 6 informing me that the chemo therapy was basically totally ineffective on me. During the chemotherapy, my IgG paraprotein had stagnated and actually plateaued at considerably less than what was expected. Rather than chemotherapy, I was transitioned instead to the BTK Inhibitor Zanubrutinib. As Zanubrutinib is capsules, they can be taken daily at home eliminating the need to go to a medical site to be injected. I've been on Zanubrutinib for 25 months now and am currently considered stable as my IgG paraprotein levels are not currently progressing; however, these same levels are not decreasing either.