@hopefullibrarian
Yes. And typical dose Keppra made me stop dreaming. I knew that was very bad. I had the best neurologist in the Midwest by far. He would NOT even HEAR about me wanting to wean off.
HIs words were always the same - "If you had a seizure, what is the worst thing that could happen?" Of course, the answer was that I could die, so he always just smiled knowing he'd made his point. I stopped having seizures 30 years ago! I had one every 11 years due to not taking the meds (because I had forgotten or was too sick to) ONLY! And the best neurologist in the Country wouldn't even consider me getting off of it. We he retired I was free to make my own choices, and it seems I was correct. I did NOT need the meds the last 30 years! I took 35 million milligrams of epilepsy medication in over 50 years. With the liquid I SLOWLY (at least 2 years+) just got down from 1,800 ml a day to (dropping 10 ml every 10 days) my current 10 milligrams a day. I weaned of so gradually, that now it doesn't have the hold it once did. Now I laugh at the Keppra still trying to hold onto me. After Christmas, I just stopped taking the 10 mill. It was so small you couldn't even taste it. Now after stage 4 cancer, brain cancer and epilepsy, I have NEVER felt better in my life. Well maybe when I was 10. I think many times the Drs are scared into a fetal position when it might serve them all better to listen to their patients, who can understand epilepsy from a different perspective. My famous Dr said I was his best patient and called me "Professor" (he was THE teacher in the Midwest) He knew I was a smart man but was just too rigid to listen closely enough. Thanks to everyone that commented. Good luck with whatever you do in getting through this. The 1st google search I saw said to give it some time, like 2 weeks. lol. I did it in 2 years and 4 months. If it were a different drug, some can be gotten off seamlessly. When I searched for 2-year weaning, I found out there were MANY people with the same problem. It was the people on the mood drugs, they were saying it took them 2 years. THAT was my problem, Keppra is a mood drug, which in my estimation is why they are so difficult to wean off of. Thank you all for your kind wishes and support. I pray for all of you.