@drcopp I just wish there was a way to do it anonymously. Free is never free. They use your data to make a profit somehow. I don't want my DNA with my name attached to it for someone to exploit.
Am I paranoid, maybe but so many people get exploited and I don't want to be one of them.
If I could get a test kit over the counter someplace and send it in and referenced by the number on the kit, maybe I'd do it.
@service1010 The bad guys could get your DNA and it will match up with your kids DNA and if you have anything bad/interesting in your health, then exploit things like that. Not saying that will happen, but nothing is secure anymore. Like I said, nothing is free.
Talking about secure, I had a government position and all my information, I mean all of it, got hacked from their computers, I haven't seen anything of it yet, but it's still out there on the market for people to exploit and that was a secure government system.
@service1010 The bad guys could get your DNA and it will match up with your kids DNA and if you have anything bad/interesting in your health, then exploit things like that. Not saying that will happen, but nothing is secure anymore. Like I said, nothing is free.
Talking about secure, I had a government position and all my information, I mean all of it, got hacked from their computers, I haven't seen anything of it yet, but it's still out there on the market for people to exploit and that was a secure government system.
@drcopp I just wish there was a way to do it anonymously. Free is never free. They use your data to make a profit somehow. I don't want my DNA with my name attached to it for someone to exploit.
Am I paranoid, maybe but so many people get exploited and I don't want to be one of them.
If I could get a test kit over the counter someplace and send it in and referenced by the number on the kit, maybe I'd do it.
@bonanzaman I felt the same way until recently. At this age and point in my life I just don't feel that, who knows what about me, really matters and don't see how they could really benefit at my expense. I finally took the test and it came back with just one mutation and that was for melanoma. This test is a not somatic test and doesn't to my knowledge provide any cancer treatment help. I see it as a heads up test for things to be aware of.
@bonanzaman I felt the same way until recently. At this age and point in my life I just don't feel that, who knows what about me, really matters and don't see how they could really benefit at my expense. I finally took the test and it came back with just one mutation and that was for melanoma. This test is a not somatic test and doesn't to my knowledge provide any cancer treatment help. I see it as a heads up test for things to be aware of.
@chippydoo your DNA testing can also affect your children as if they are predisposed to get illnesses, some people could exploit that. I don't trust that all good intentions are necessarily good.
Have a great new year!!
@chippydoo your DNA testing can also affect your children as if they are predisposed to get illnesses, some people could exploit that. I don't trust that all good intentions are necessarily good.
Have a great new year!!
@bonanzaman How would they know who my children are? With AI and all the information we have to give up throughout our lives I feel it is already out there. It is something that I no longer fear. Heck, Zuck and Google probably have had that info for years lol.
@bonanzaman How would they know who my children are? With AI and all the information we have to give up throughout our lives I feel it is already out there. It is something that I no longer fear. Heck, Zuck and Google probably have had that info for years lol.
@chippydoo DNA testers share their data with a lot of companies. Do a search on "do the DNA test companies share their data". If your kids do a DNA test, then it will pop right up that you are family and if you have a genetic detectible disease that's in your DNA that information will be there too.
The insurers would love that information to deny coverage if they have a good chance of getting an expensive illness. There are some protections against that, but the data is out there. Do a search on https://www.brookings.edu/articles/defining-pre-existing-conditions-in-an-era-of-genetic-testing/
There are some protections with the Genetic Information Nondiscrimination Act (GINA) and some with the ACA.
That's where I'm coming from.
@zmarkv The most depressing part of that paper - beside the fact that I couldn’t make sense of a lot of it - is that chemo is only 5% effective in long term overall survival and less than 1.6% effective after 5 yrs…
I mean, these stats are startling when you think of how often chemo is used in most cancers today.
I’m hoping that this is a huge compilation of ALL data from decades ago when they used the same poisons on all cancers with little regard to their specificity. We know that drugs like Keytruda are pretty good at arresting many types of cancer and Pluvicto is ultra specific for bone marrow metastases in PCa.
Hoping that the custom tailored immuno-specific and genetic approaches raise these measly percentages.
Phil
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@bonanzaman Excellent point about your/our DNA will be available to anyone who wants it or can hack it
@service1010 The bad guys could get your DNA and it will match up with your kids DNA and if you have anything bad/interesting in your health, then exploit things like that. Not saying that will happen, but nothing is secure anymore. Like I said, nothing is free.
Talking about secure, I had a government position and all my information, I mean all of it, got hacked from their computers, I haven't seen anything of it yet, but it's still out there on the market for people to exploit and that was a secure government system.
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1 Reaction@zmarkv I apologize for fixating on this but it seems important: https://cts.businesswire.com/ct/CT
@bonanzaman ‘secure’ and ‘government’ in the same sentence?🫣
@bonanzaman I felt the same way until recently. At this age and point in my life I just don't feel that, who knows what about me, really matters and don't see how they could really benefit at my expense. I finally took the test and it came back with just one mutation and that was for melanoma. This test is a not somatic test and doesn't to my knowledge provide any cancer treatment help. I see it as a heads up test for things to be aware of.
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Like -
Helpful -
Hug
1 Reaction@chippydoo your DNA testing can also affect your children as if they are predisposed to get illnesses, some people could exploit that. I don't trust that all good intentions are necessarily good.
Have a great new year!!
@bonanzaman How would they know who my children are? With AI and all the information we have to give up throughout our lives I feel it is already out there. It is something that I no longer fear. Heck, Zuck and Google probably have had that info for years lol.
@chippydoo DNA testers share their data with a lot of companies. Do a search on "do the DNA test companies share their data". If your kids do a DNA test, then it will pop right up that you are family and if you have a genetic detectible disease that's in your DNA that information will be there too.
The insurers would love that information to deny coverage if they have a good chance of getting an expensive illness. There are some protections against that, but the data is out there. Do a search on
https://www.brookings.edu/articles/defining-pre-existing-conditions-in-an-era-of-genetic-testing/
There are some protections with the Genetic Information Nondiscrimination Act (GINA) and some with the ACA.
That's where I'm coming from.
-
Like -
Helpful -
Hug
2 Reactions@zmarkv The most depressing part of that paper - beside the fact that I couldn’t make sense of a lot of it - is that chemo is only 5% effective in long term overall survival and less than 1.6% effective after 5 yrs…
I mean, these stats are startling when you think of how often chemo is used in most cancers today.
I’m hoping that this is a huge compilation of ALL data from decades ago when they used the same poisons on all cancers with little regard to their specificity. We know that drugs like Keytruda are pretty good at arresting many types of cancer and Pluvicto is ultra specific for bone marrow metastases in PCa.
Hoping that the custom tailored immuno-specific and genetic approaches raise these measly percentages.
Phil