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This and That and Talk - My Transplant

Transplants | Last Active: Feb 14, 2023 | Replies (1670)

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@2011panc

I am feeling some anxiety and request prayers during the next few days as I prepare and undergo back surgery. As a transplant patient there are so many things that can go wrong. I have waited so long for this surgery; coverage refused by insurance, appeals rejected, strong pressure to use opioids, physical therapy put on hold, extra trips to pain clinic and injections, changing insurance, and changing dates and times of surgery. All the while living with the excruciating and never-ending pain. I am so hopeful for a resolution and at the same time so fearful that there will be another roadblock. Knowing your thoughts are with me eases my mind. Thank you for letting me share.

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Replies to "I am feeling some anxiety and request prayers during the next few days as I prepare..."

Prayers. You have to do the physical therapy that is in your future. After the doctors do their magic it will be in your hands. The first daythat the pain is gone will make it all worthwhile but it is a tough road. You can do it.

@rose999 Thank you.

@2011panc, I am also hopeful for a resolution to your pain. I know that you have struggled with this for a long time. I am going to pray for you and for all of the members of your medical team.
Will you be traveling to Rochester for this?
Have they told you whether you can anticipate a "normal" recovery, or does your transplant affect this, too?

If you haven't already met our moderator, Justin, @JustinMcClanahan , I would like to introduce you to him. I know that you have a history of self advocacy and self care, but he is our moderator in Bones, Joints and Muscles. I know that he would welcome any questions that you might still have.

Gentle hug,
Rosemary

@rosemarya Thank you. I will be having this surgery closer to home and by the first surgeon that saw me. I have no idea how or if my transplant will affect my recovery. At this point my main concern is protecting my failing kidneys and maintaining the transplant already in place should not be an issue. If it does become an issue, we will have to deal with it then, right? lol I am relieved to be closer to home following this surgery. May continuing concern is for my husband. He is a trooper, but these things wear on him.

@2011panc, Prayers for your husband, too.

@2011panc prayers are with you as you head for your back surgery. I am surprised that your insurance refused coverage and glad that you have found a way to get it done by changing insurance companies. May I ask where you from, the locale where you are having your back surgery done? I always find it interesting to hear where we all are from. As I have mentioned on a number of posts, I live in southern NH, about 55 miles from Boston, and Boston is where I go for anything off any consequence. I feel so fortunate to have such wonderful medical facilities within an hour or two away -- an hour with no traffic, two hours mid-day.
I had a knee replacement in October, which of course is different from back surgery, but my being a transplant recipient did not seem to effect that at all. The only effect I believe was that I could not take NSAIDs so I had to go from narcotics to a limited amount of tylenol, which I do not find very effective. The hospital I used for the knee, Brigham and Women's, is a partner hospital with Mass General so there was an easy communication between them and they are on the same portal.
Let us know as soon as you are able how the surgery goes and how you are feeling, we will be thinking of you.
JK

Thinking of you @2011panc and your husband. Remember to breathe, especially the exhales. If you take care of nice, slow exhales, the inhales will take care of themselves. 🙂

@2011panc How are you doing? I presume the surgery is over and I hope it did not leave you with too much discomfort. If it did just try to remember that the discomfort will pass and you will be happy that you had it done.
I hope you are home by now and that you are improving every day.
JK