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Switching CellCept (mycophenolate mofetil) for Sirolimus (rapamycin)?
Transplants | Last Active: 5 days ago | Replies (79)Comment receiving replies
Hi @hello1234 ,
Hubby gets labs done every month so he retested the following month with the same creatinine result. His normal creatinine baseline is about 1.17 (i know this is still considered high because some people have less than 1), creatinine was higher right after transplant but slowly dropped over time. Now it is about 0.2 higher so I'm hopping drinking more water may improve. I will take your advice and ask hubby to drink water before going into lab. His lab is usually first thing in the a m with fasting so he doesn't take in anything prior to blood draw. Starting in 2026, I was going to have him go in labs monthly just to do the trough levels but now I'd like for him to also do the CMP - would like to see trend in creatinine.
What about you? How often do you get labs drawn? Neph was telling us hubby can just do it every 3 months.
Replies to "Hi @hello1234 , Hubby gets labs done every month so he retested the following month with..."
@caretakermom
My lab levels vary a little bit from routine lab to routine lab. I have my routine labs every 3 months, which is what your husband's nephrologist is suggesting for your husband.
Is your husband's doctor concerned about his creatinine level?
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Hi @caretakermom 🥰
Yes, I get full labs every month. As long as hubby is getting stabbed, you might as well get the full picture every month. (Sometimes a number is out of range, and you can see the reason from another result).
I think a full picture is helpful when looking for trends and it helps to create historical data that is valuable to the docs.
I also go in fasting (no food after midnight) so I can get an accurate glucose and lipids.
I think it's important to drink water before the monthly blood and urine tests to make it easier for the tech to find a plump vein at her first try and it makes it easier for me to give a quick urine sample.
I also think it's important to drink the same amount of water so looking at the results is comparing apples to apples each month.
If he drinks a different amount each time, you can never be sure how the lack of hydration (or too much water) is affecting the results.
Make it easy by asking hubby to always drinking the same amount before you leave the house to drive over to the lab.
I use bottled water so it's already measured out for me.
I drink the bottle and then drive over. 👍
Please keep me posted. I am very hopeful that a bottle of water and some time passing after the contrast, his creatinine will be back to baseline.