Connect
← Return to Switching CellCept (mycophenolate mofetil) for Sirolimus (rapamycin)?
Discussion
Switching CellCept (mycophenolate mofetil) for Sirolimus (rapamycin)?
Transplants | Last Active: 5 days ago | Replies (79)Comment receiving replies
Hi @caretakermom 🥰
Happy New Year to you and hubby!! I was getting a little worried when I didn't hear from you, so I am happy to hear that you were busy with Christmas errands.
Sorry to hear about the worry part. I am surprised to hear that hubby had a slight increase in creatinine, but .2 can be caused by something very minor like hydration or a temporary blip caused by the contrast. I forget what is his normal creatinine baseline?
Did hubby hydrate and retest the following week? He should definitely retest before you both get overly concerned.
Also, does hubby standardize the amount of water he drinks before his blood tests?
I realized my numbers were jumping around a little too, so now I drink the same amount of bottled water one hour before my blood tests every time I go.
It has really helped to stabilize the blood results. I highly recommend it! Does hubby test every month or every 3 months now?
Replies to "Hi @caretakermom 🥰 Happy New Year to you and hubby!! I was getting a little worried..."
Connect
Hi @hello1234 ,
Hubby gets labs done every month so he retested the following month with the same creatinine result. His normal creatinine baseline is about 1.17 (i know this is still considered high because some people have less than 1), creatinine was higher right after transplant but slowly dropped over time. Now it is about 0.2 higher so I'm hopping drinking more water may improve. I will take your advice and ask hubby to drink water before going into lab. His lab is usually first thing in the a m with fasting so he doesn't take in anything prior to blood draw. Starting in 2026, I was going to have him go in labs monthly just to do the trough levels but now I'd like for him to also do the CMP - would like to see trend in creatinine.
What about you? How often do you get labs drawn? Neph was telling us hubby can just do it every 3 months.