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This and That and Talk - My Transplant

Transplants | Last Active: Aug 14 9:57pm | Replies (1677)

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@rose999

Thank you. I just submitted my request on line with no preference. I needed that little push. I was going to put it off but I know that doesn’t help anything.

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Replies to "Thank you. I just submitted my request on line with no preference. I needed that little..."

@rose999 Here's a hug for you. Keep in touch. Rosemary

I received the appt call this morning but was told the calendar was filled for the next 12 weeks and they weren’t booking past that. He told me call back in a week or two. He did say that Rochester was best for liver. My son is almost at his yr mark for his transplant. He is doing great. My brother who died in Sept had an autopsy for his undiagnosed liver disease but it hasn’t shown up yet. My 14 yr old grandson saw a GI specialist experienced in mitochondria and pancreas issues but couldn’t shed light on why he had two attacks in last 6 mos. So we have lots of questions but no answers. My doctor thinks they are all unrelated but 2017 was a problematic year. I appreciate your understanding and help. Hug back to you.

@senior999 - Hello! I am Kristin, one of the staff at the transplant clinic in Rochester, Minnesota. I am not sure who you spoke with, but I just checked with our liver team, and they are booking right now for around the end of March/beginning of April. You can contact them directly at 866-227-7501 for more details. If you are interested in the other sites, Arizona or Florida, I am happy to contact them to see when they have appointments available as well. Just let me know. Have a nice week!
-Kristin

That's interesting, because I messaged Friday for April and they told the furthest out they schedule is 3 months and that April was too far out. I'm going to wait until Monday and try again.

Hi @jodeej - Some calendars may not be built for the entire month of April yet, but should be done very soon. We typically book 12 weeks at a time, so those should be available through the end of April by February 1 or sometime soon after. Let me know if I can help!

Thank you! I will!

@rose999, Also be sure to read the previous posts about scheduling appointments. @keggebraaten has shared some helpful information.

Mayo is going to get my records before we schedule. Everyone has been so helpful. Thank you.

@senior999, Looks like you just took a big step forward!
Hugs,
Rosemary