Now what? Blood in urine

Posted by nifty50co @nifty50co, Nov 18, 2025

I am a 52 year old female. I have a complex medical history with autoimmune diseases, GI issues and thyroid cancer. I had a radical hysterectomy 5 years ago for endometriosis. 10 days ago I suddenly saw a lot of blood in my urine. The blood comes and goes, sometimes even leaking onto a panty liner and sometimes contains small clots. Initial urine culture showed large blood, no leukocytes, trace protein and multiple flora. Blood labs show normal kidney function. My symptoms have been going more often, feeling like I can’t empty 100%, significant pressure in lower abdomen, no appetite and exhaustion. Yesterday I had a cystoscopy. Dr. Said he didn’t see anything to even biopsy. He said he saw blood and irritation at the bottom of the bladder and told me to use vaginal estrogen cream to treat and see him for follow up in January. My spidey sense tells me there’s something not right. What do I do next? I’m not fearful that something is wrong, but I am terrified, frustrated and angry that something is being missed and it’s up to me to convince a doctor to keep looking 🙁

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Crap. I type with my thumb, it probably took me an hour to comment and then I saw your later posts. Great to see things are getting clearer for you!

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Thanks for your reply! I asked about Blue Light and he said, “we don’t do that here”. It’s the University affiliated hospital, btw 🙄 No cytology, no further imaging ordered. I’m making calls now to try to get a second opinion. I see hematologist tomorrow (all this bleeding has made my iron tank). Can I ask her to order anything?

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@nifty50co
I realize your last post was in November, so hopefully you have gotten someone to take you seriously and try to figure it out.
Very recently, I saw that there was a medication that could help with chemo brain - unrelated of course. However, the idea of trying to get answers/treatment is what has inspired me to write to you. I had never heard of "advocates" before, but there are professionals who perform the role of advocate and it is their job to advocate for you - organize treatment, etc. I understand it is covered by medicare and hopefully some other insurance.
If you cannot get anyone to take your problem seriously, perhaps trying to work with an advocate would help. I am about to find out soon, for myself.
Good luck. You seem to know that advocating for yourself is important, if not very frustrating!

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