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Post Exertional Malaise
I have always been the family "Energizer Bunny". But this was my last family gathering I can host.
5yrs of fighting long covid, since Spring 2020. Always determined I could be regular self by grit. Christmas Day I couldn't even get dressed. I didn't care if PrimeRib got cooked or not.(Which I can't smell or taste anyway) I've jumped into almost every suggested idea on this site..... supplements, etc., Skeptical relatives still don't understand. I was @ Mayo LongCovid clinic 4yrs ago, my Primary Doc is sympathetic, but Standard_Of-Care simply doesn't work for this weirdo viral invasion. Only coping strategies offered.
The whole world, millions of people , affected, but still no cures???!!!
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@mspaminreno hi!
You say you take Amino acids.
Is that a pill or are just saying you
Are eating a lot of protein rich food. Where do you get Luteolin and Rutin, and what are they?
I’m completely ignorant on all this stuff and my NP isn’t too swift.
I’m seeing a Infectious disease doc that has put me on a regimen to avoid Bladder infections, since I took so many antibiotics for a period of yrs, my body can no longer stand them, and he tells me if I get a particular bacteria again,
I will have to have an infusion twice a day for 3 days in hospital.
So ofcourse I will mention having
This LC now, and maybe he can help. I appreciate all of you responding to my problem.
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1 Reaction@curiousme hang in there, you are not alone.
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3 Reactions@kyrazpollet
Ah, ha! I found you again. I saw you on my smart phone but had to search over here on this newsletter to find you again.
Yes, the Amino Acids I take are supplements. Because I learned that our mitochondria has been damaged, I started by looking for a product to support this condition. I found products by Life Extension and looked at the ingredients and decided to start taking them separately. I buy all my products from iHerb.com. They are affordable and they ship fast with free shipping avilable at $30.00.
Sadly, it's a process...and it takes time. One nice thing that comes to mind is that Amino Acids are taken up by the body quickly. And, I feel the positive affects quite soon.
The sad thing about PEM is that something we did yesterday, can bring on a bout today. Resting so important.
My 'energy attacks' come on me when I've looked at social media on my cell phone as well as when I've done a little too much of something physical. It's maddening.
Please take a few minutes and go to the (free) YouTube channels of: 1) Broken Battery and 2) Bateman Horne Center and 3) Gez Medinger. You will learn A LOT. And, you won't feel quite so alone.
To help with restoring energy, consider Yoga Nida sessions. No...it's not physical as you will see. Again...here's a free YouTube Channel and I use it twice a day: Ally Boothroyd. You will be amazed.
I hope this helps get you started.
Hugs,
Pam
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6 ReactionsYes, I'm very conscious of amount of protein I ingest daily. I've taken to eating (either) meat or meatless breakfast patties to start my day together with a piece of toast and half an apple.
I purchase my Luteolin+Rutin at iHerb.com where they have a terrific selection of products, including groceries when needed.
My best,
Pam
@welchllb
I thought to throw my 2-cents in regarding GI issues. I use "Chewable Papaya Enzymes" by NOW before breakfast in the morning and again later in the day if I feel like I might need to.
Also, I take "Triple Magnesium Complex" by Swanson 3 days a week, or more if necessary.
My best,
Pam
@mspaminreno
Thank you so much for advice of products and what you are doing and how it is affecting you. This will utterly ridiculous to you.
I’m 91 yrs old. And I was given this I pad. So I’m brand new at it , and not too great on it, but am learning googlingand my kids don’t want me to order anything on line. So if I need something, I’ve been asking them to order things for me, and then I pay them back.
They both live 2 plus hrs away from me. I am new to using an I pad, I don’t have a Smart ph.so I will ask them if one or the other will order for me. I appreciate your advice so much, I’d like to give you two hugs.! Excuse me if I make a lot of typos., learning at 90 yrs old , “ new Fangled ways” of doing stuff is not easy. And my brain isn’t on all cylinders these days.
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4 ReactionsI understand, totally, how you feel.
You're doing great!
Hugs,
Pam
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No, More than beans. After several months of trial and error (because the whey protein created GI issues) I found VEGA Protein + Greens, 20 g Creamy Vanilla. This has a pea protein base, similar to the AGT foods Veggipasta rotoni. Two meals a day: Prepare my Gluten free Farmers We Know Rolled Oats for the day. Bring 4 cups water to boil, add 2 cups rolled oats and cook for 8 minutes. This creates 4 cups of cooked rolled oats. Opinion: If you want the soluable fiber you don't need to rinse this much. I don't want the soluable fiber so I rinse it was a lot of hot water. That's up to you. The meal: 5 oz of cooked rolled oats, one Dannon light & Fit Greek Blueberry Yougart, one cup, 140 g organic frozen blueberries (thaw for 60 sec in microwave), liquify with Califa Farms organic oat milk. This is 8 oz of food, 40 g of protein and 10 g of fiber. Your system may not be able to handle this much at once, so this could actually be two meals. Check with your doctors first. I have been eating this everyday for 4 years now. Boring? Yes! But I feel that these changes have helped me get back to my pre COVID life.
@curiousme
Oh, gosh...I know how you feel. I, too, was very active; snowshoed and hiked all over the nearby Sierra Nevada Mountains; took photographs, painted watercolors, attended Craft Shows and Art Exhibits; entertained friends in my small condominium, etc. I'm 83 years of age and 5 years post covid. I 'manage' my symptoms, including PEM by taking a lot of supplements and participate in (non-physical) YogaNidra sessions, 2 x day. Believe it or not, these provide my body with some energy and strength. I highly recommend the free YouTube channel of Ally Boothroyd.
Yes...I have to 'rest' 2; sometimes 3; times per day...making it difficult to get anything done. So, as you can see, you are not alone. There are millions of us. I think it helps to be in touch with one another.
For more information about 'our' condition, please visit the YouTube Channels of: Gez Medinger (he's one of us) - go back to one of his first videos when he described PEM and visit Broken Battery and the Bateman Horne Center.
My best to you,
Pam
@mspaminreno Thank you for all of the YT information. I am 70 years old and I've been suffering for nearly two years and none of the supplements I've tried have helped. I keep searching for more information and these YT channels are a great place to continue my search. Be blessed and be healed! ❤