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Mentor

This and That and Talk - My Transplant

Posted by Rosemary, Volunteer Mentor @rosemarya, Apr 9, 2017

As our Mayo Connect community grows, I am constantly meeting organ transplant members on a wide variety of forums with a wide range of issues that are not directly transplant specific. However, because we are all transplant recipients, we have a special connection: a unique journey and best of all - a new life! We don't always need help or advice. Many times we just want to chat with someone like us! That is my purpose in starting This and That and Talk.

Drop in and say 'Hi'. You are welcome anytime.

What do you want t to talk about? What words can you offer to someone who is on the journey? Do you have any questions for another recipient?

Interested in more discussions like this? Go to the Transplants Support Group.

Mentor
Rosemary, Volunteer Mentor | @rosemarya | Jan 5, 2018
In reply to @mauraacro "Hi, I'm brand new here and technologically challenged so feel free to point me in the..." + (show)
@mauraacro

Hi, I'm brand new here and technologically challenged so feel free to point me in the right direction if I've posted in the wrong place or if there is a better place for me to learn about my upcoming surgery.
I will be donating a kidney January 12th. I'm excited and nervous. Is there someone here that has donated or knows someone who has? I know what Mayo has told me to expect but was hoping to hear from a real person. Thank you!

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@glinda, Glinda, My teacher friends call that an A+ report!

I go thru a different series of tests than you, but, I know that the good report is such a big relief. I think that I might have heard your "WooHoo" carried by the wind way down here to central Kentucky;-)
I also think that you and I worked our doctors hard enough before our transplants - so it is okay to go easy on them now!

*Thank you for sharing your 'secret' with all of us: take meds as directed, eat healthy, and keep up the good habits you already have established.

I am glad you are back, and healthy. We look forward to continuing to share and learn with you.
Rosemary

REPLY
@tbirdmunchkin | @glinda | Jan 5, 2018
In reply to @mauraacro "Hi, I'm brand new here and technologically challenged so feel free to point me in the..." + (show)
@mauraacro

Hi, I'm brand new here and technologically challenged so feel free to point me in the right direction if I've posted in the wrong place or if there is a better place for me to learn about my upcoming surgery.
I will be donating a kidney January 12th. I'm excited and nervous. Is there someone here that has donated or knows someone who has? I know what Mayo has told me to expect but was hoping to hear from a real person. Thank you!

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Thanks Rosemary , I was alittle worried there for a few days as my astma was severe and my allergies also before I went to rochester and was worried they wouldnt let me go thru the angiogram and right heart catheterization because of it but they did and am so glad they did thats two less things that I have to worry about and I keep surprising my doctors every year that now they keep asking me what else can they di for me it's vetting to be a standing joke between me and my doctors

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Jan 5, 2018
In reply to @mauraacro "Hi, I'm brand new here and technologically challenged so feel free to point me in the..." + (show)
@mauraacro

Hi, I'm brand new here and technologically challenged so feel free to point me in the right direction if I've posted in the wrong place or if there is a better place for me to learn about my upcoming surgery.
I will be donating a kidney January 12th. I'm excited and nervous. Is there someone here that has donated or knows someone who has? I know what Mayo has told me to expect but was hoping to hear from a real person. Thank you!

Jump to this post

@glinda, Do you see the same doctors each year?
When I call to schedule my appointment (which I will be doing in a few weeks) they always ask me if I have a particular request to see a particular doctor. I decline that because I saw so many during my pretransplant care.
Rosemary

REPLY
@tbirdmunchkin | @glinda | Jan 5, 2018
In reply to @mauraacro "Hi, I'm brand new here and technologically challenged so feel free to point me in the..." + (show)
@mauraacro

Hi, I'm brand new here and technologically challenged so feel free to point me in the right direction if I've posted in the wrong place or if there is a better place for me to learn about my upcoming surgery.
I will be donating a kidney January 12th. I'm excited and nervous. Is there someone here that has donated or knows someone who has? I know what Mayo has told me to expect but was hoping to hear from a real person. Thank you!

Jump to this post

My Drs. Are as follows Dr. RODEHEFFER, DR.BOILSON, DR.PERIERA, JEAN WAGNER NP, DR EDWARDS, DR CLAVELL AND DR. FRANTZ, AND DR KUSHWAHA. Those are all my doctors and I usually see one or the other this time I saw jean wagner on tuesday morning and yesterday after my tests were done I went back from St.Marys hospital to charlton the dr.was dr.rodeheffer so I do see them all just not every year

REPLY
@tbirdmunchkin | @glinda | Jan 5, 2018
In reply to @mauraacro "Hi, I'm brand new here and technologically challenged so feel free to point me in the..." + (show)
@mauraacro

Hi, I'm brand new here and technologically challenged so feel free to point me in the right direction if I've posted in the wrong place or if there is a better place for me to learn about my upcoming surgery.
I will be donating a kidney January 12th. I'm excited and nervous. Is there someone here that has donated or knows someone who has? I know what Mayo has told me to expect but was hoping to hear from a real person. Thank you!

Jump to this post

The same dr as they all are a part of my team

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jan 5, 2018
In reply to @mauraacro "Hi, I'm brand new here and technologically challenged so feel free to point me in the..." + (show)
@mauraacro

Hi, I'm brand new here and technologically challenged so feel free to point me in the right direction if I've posted in the wrong place or if there is a better place for me to learn about my upcoming surgery.
I will be donating a kidney January 12th. I'm excited and nervous. Is there someone here that has donated or knows someone who has? I know what Mayo has told me to expect but was hoping to hear from a real person. Thank you!

Jump to this post

@glinda It sounds like you have a great team on your side! Teresa

REPLY
@tbirdmunchkin | @glinda | Jan 5, 2018
In reply to @mauraacro "Hi, I'm brand new here and technologically challenged so feel free to point me in the..." + (show)
@mauraacro

Hi, I'm brand new here and technologically challenged so feel free to point me in the right direction if I've posted in the wrong place or if there is a better place for me to learn about my upcoming surgery.
I will be donating a kidney January 12th. I'm excited and nervous. Is there someone here that has donated or knows someone who has? I know what Mayo has told me to expect but was hoping to hear from a real person. Thank you!

Jump to this post

es I do and they have never given up on me and I keep surprising them as I have been sick a couple of times once in 2012 so bad that I was transferred from eau claire wisconsin where I live to rochester minnesota and they were ready for me to be in serious cindition and i sirprised them with how bright eyed I looked and how everything in the line of tests were going as when I was in hospital in eau claire here at home I had to be given 6 to 8 bags of fluid for extreme dehydration so i do have agreat team they listen to everyrhing I have to say then tell me what they think I am so glad that I have them for my team

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jan 5, 2018
In reply to @mauraacro "Hi, I'm brand new here and technologically challenged so feel free to point me in the..." + (show)
@mauraacro

Hi, I'm brand new here and technologically challenged so feel free to point me in the right direction if I've posted in the wrong place or if there is a better place for me to learn about my upcoming surgery.
I will be donating a kidney January 12th. I'm excited and nervous. Is there someone here that has donated or knows someone who has? I know what Mayo has told me to expect but was hoping to hear from a real person. Thank you!

Jump to this post

@glinda That is wonderful!

REPLY
JK | @contentandwell | Jan 5, 2018
In reply to @mauraacro "Hi, I'm brand new here and technologically challenged so feel free to point me in the..." + (show)
@mauraacro

Hi, I'm brand new here and technologically challenged so feel free to point me in the right direction if I've posted in the wrong place or if there is a better place for me to learn about my upcoming surgery.
I will be donating a kidney January 12th. I'm excited and nervous. Is there someone here that has donated or knows someone who has? I know what Mayo has told me to expect but was hoping to hear from a real person. Thank you!

Jump to this post

@rosemarya The transplant recipients at Mayo, when they return yearly, have a battery of tests? I will be curious next year to see what is done when I return to MGH. I had my transplant in October 2016 and saw my surgeon weekly, then monthly, then every three months, until December but other than lab tests prior to my visit there were no other tests. I did have at some point some testing to check for pulmonary hypertension (CT?) and have regular MRIs to make sure the malignancies have not spread, but that's all, no other tests. What type of tests does Mayo do yearly?
JK

REPLY
buckeyegurl | @buckeyegurl | Jan 6, 2018

@rosemarya , I just wanted to let you know I finally got rid of my bi VADs and was blessed to get my heart transplant! December 14, 2018! I am so happy and can’t wait to start living the next chapter in my life!

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