← Return to Followup for Noninvasive High-Grade: Anyone chosen no more treatment?

Discussion
Comment receiving replies
Profile picture for quahog @quahog

@jlp27 my history is very similar to yours, except I’m 80. In the midst of my third maintenance BCG treatment series. I was determined too to do everything I can to prevent a reoccurrence except that my side effects care more substantial. It takes two to three days for me to recover from frequent urgent urinations and I get flu like symptoms and lethargy. Recover well before my next weekly treatment but it’s not pleasant. My doc agreed to lower dose to 1/3 normal treatment to see if it helps with the side effects. After next week I will have had 12 treatments with three clear cystoscopes. I might call it quits after this series and opt for regular cystoscopes. Also it appears that multi parameter MRIs might be as good or better than cystoscopy for detecting reoccurrence.

Jump to this post


Replies to "@jlp27 my history is very similar to yours, except I’m 80. In the midst of my..."

@quahog I'm not sure what a "normal" dose is for BCG but all of my first six were 1/3 BCG doses. These are considered to be normal and acceptable under certain clinical conditions from what I understand. Perhaps this is why my reaction to BCG has been much less severe than other stories on this site. I'm OK with everything thus far in my journey. If your reaction to the 1/3 doses is better, perhaps that might encourage you to continue with BCG. In either case, best wishes for a successful outcome.