MPN: How do you deal with out of control hives?

@darginskylisa Hives are so miserable and often unbearable when you can’t get comfortable. I had them for brief time do to a blood product reaction and it was worse than pain. So you have my sincerest empathy if this is a continual issue!
There can be underlying causes for this to happen such as thyroid condtions, blood/bone marrow condtions, autoimmune diseases, reactions to meds, allergies…the list goes on. It is important, though sometimes challenging, to find that underlying cause.

There are other members in Connect discussing similar events. Here is one conversation…a little dated but still relevant.
Horrible Hives
https://connect.mayoclinic.org/discussion/horrible-hives/
This is a link to the full search results on Hives:
https://connect.mayoclinic.org/search/
Have you been to see any specialists for your hives such as an allergist, dermatologist, endocrinologist or rheumatologist to check for underlying health issues?

Much gratitude for sharing me information… I’ve seen so many doctors re this matter… I’m truly at a loss

@darginskylisa, I notice that you posted your question about hives in the Blood Cancers & Disorders group. Are you receiving treatment for a blood-related condition?

Yes, I was diagnosed with Essential Thrombocythemia, a Myloproliferative Neoplasm, 12/23 additionally Sjögren’s syndrome 12/25.

@darginskylisa did you notice persistent hives before your ET diagnosis?? This was something that I struggled with often when my platelets were consistently going up

Many of us with ET experience "allergy" problems: dry skin, itching, dry eyes. It's believed that our large, malformed platelets trigger our immune response.

With an OK from my oncologist, I sometime take loratadine (generic form of Claritin) to relieve this discomfort.

@loribmt lmao, I’ve seen everyone: pcp, Urgent care, rheumatologist, allergist, and dermatologist, pharmacist, et al

I just keep going

Ty for sharing the past conversations

@janemc of all the meds I’ve tried, so far Allegra x 2 both am/ pm is making a difference

@darginskylisa

Discovering what works best for you -- excellent!

@janemc True, true… Off to see dermatologist as I text