Long hard story, my wife AND I went through total Larengectomy back in May 2025 ,all at St.Vincents in Worcester MA side note. Awesome Hospital so first 3 weeks in was Biopsy and Tracheotomy Full Blown Voice Box Cancer was diagnosed, I should say something now or would be derelict, Baystate Medical Center found this Cancer way back in November 2024 Wife went to ER with very HOARSE VOICE AND VERY PAINFUL SORE THROAT basically sent home and told to contact Primary doctor ok I have to give more information Wife was raging alcoholic to be fair Baystate Center was like Not her again! Yah past 3 years nonstop around the clock, many, many Nipps 100 proof or better falls, outbursts, walking neighborhood naked yes. Very Depressed Woman so sitting in bed with ciggs and Nipps for 3 years produced throat cancer ,they saw it on xray ,but said nothing to us Just follow up with Primary ,so being to inebriated to go to any medical appointments o I made them but come time to go ,forget about it This went on for 4 months Hospital knew she wasn't gonna see her doctor and they would have to do something , Ya they did,made appointment with ENT oncologist for October 15th 2025 ,, only thing I can think is they figure she be dead by then, Problem Solved If I didn't get on phone start making calls no one else would. I finally got her appointment with Associates in Orentology in Worcester Mass I can't say enough great things about Dr.Du she 1 in Million si now back to 3rd week in May. 3 weeks in for Biopsy and Trach healed nice sent home for few days be back June 3rd for Total Larengectomy WOW like slice someone ear to ear 4 weeks to somewhat heal , ended up with good infection but me living in room with her gave them 24/7 wound healer I changed drains more often than they would lol I took most of care since that was my job past 2-3 years Yep it's for better or worse plus I figured she definitely was my care taker for most of our 47 years So now we home with STILL good open wound , but that didn't matter, it was back to booze very fast DOORDASH will accommodate anything While im napping or out shopping she does delivery ,, o ya ,forgot,, Fistula opens up like 2nd week after Larengectomy seems wife wasn't supposed to eat normal food while healing Oppps so after HOARSE runs they close barn door ,, put in stomach feeding tube but food , booze, too drunk to take care of self AT ALL ,I was going out of my mind trying to do it all Cancer care sure but Cancer and alcoholism NOPE. I cried out to every Organization I could find Her going ( no joke) 3-4 times a week to ER for mucas Plugs,, Pneumonia , falls, and just plain I Need a Break 4 months this goes on Its funny took a really caring nurse at Baystate to see me and say wow ARE YOU OK?? I was amazed, someone asking me WOW so that's how wife spent 3 weeks in hospital while waiting for Extended Care Facility with her medical conditions u be surprised how many don't have those kinds beds of course no wer around home. Has to be Hour and 25 minutes away , but this Lanessa Extended Care Facility will transport her to all appointments Since she missed window for radiation treatments and started Speech and Swallow to get voice BUT fistula prevented both NOW Back on some sort of track ,, no drinking 3 months might have shot. HERE'S THE KICKER she don't want to go on anymore says it's too much trouble
@donsasen, that's an awful lot for both of you. How are things working out with the extended care service? How are you doing?