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Could this be Amyloidosis?

Blood Cancers & Disorders | Last Active: Jan 10 12:11pm | Replies (21)

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Profile picture for ump2929 @ump2929

what happens after you have tested positive for amyloidosis and just had the bone marrow biopsy? Are they going to go over chemo treatments? Looks like I have AL Amyloidosis

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Replies to "what happens after you have tested positive for amyloidosis and just had the bone marrow biopsy?..."

Hi @ump2929, Welcome to Mayo Connect. It looks as though your doctor is concerned that you may have AL Amyloidosis and has ordered testing to confirm a diagnosis. It can take a week or so for all of the results to be returned on the bone marrow biopsy. So I would expect the next steps, once your doctor has results from all of your tests including labs, would be to have a consultation with you regarding the diagnosis and potential treatments.

Members in Connect aren’t able to diagnose or offer treatments but they can share their experiences with others.
I’ve done a search and found several conversations with members that you might want to look through to see if they are helpful for you.
Here is one such discussion on AL Amyloidosis:
~Recently diagnosed with AL Amyloidosis: Any advice?
https://connect.mayoclinic.org/discussion/al-amyloidosis-2/
This is a link to the results of my search where you’ll find several other discussions on AL Amyloidosis
https://connect.mayoclinic.org/search/
Also, below are a couple of informational links on AL Amyloidosis which may help you understand a little more about the condition and possible treatment options. Having a little more knowledge about what’s going on will help you when talking to your doctor. It can also be helpful to make a list of questions that you want to discuss with your doctor so you maximize the appointment. I tend to get sidetracked when chatting with my doctor, so a little list helps me stay on task. Doctors like that too!
From Mayo Clinic:
https://www.mayoclinic.org/diseases-conditions/amyloidosis/symptoms-causes/syc-20353178
From Cleveland Clinic:
https://my.clevelandclinic.org/health/diseases/15718-amyloidosis-al-amyloid-light-chain
What were your symptoms that lead to having all the tests for amyloidosis? Do you have a date for a consultation?