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Fibromyalgia worsened since Covid
Fibromyalgia | Last Active: 2 days ago | Replies (7)Comment receiving replies
@daisy17 my bloods have all come back normal too, hence the diagnosis of Covid worsening my fibromyalgia. I’ve read that Tonmya is Cyclobenzaprine but it’s taken sublingually at a different dose. I’ve been told about low dose naltrexone also, so that’s helped you more than the cyclobenzaprine?
I’m already taking anxiety meds and monthly migraine injections, I don’t wish to take so many medications. I need to make sure if I do take anything extra, it’s the right one for me and my pains 😓 with few side effects. I’ve been procrastinating taking the medication for my slow gut, but the natural supplements haven’t been helping so at some point I need to start those. I also need to check that low dose naltrexone doesn’t affect the gut, if it does I’ll be told to avoid taking it. I didn’t actually check that with Tonmya 🤦🏻♀️
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@sheevym I can relate to the tingling feeling you mentioned. I had that too. It would wake me up in the middle of the night, in my legs and arms, and then the pain would come. Some days the muscle pains were so bad, it was hard to think or function. Terrible insomnia that lasted for years. I also had periodic headaches that would come and go, lasting 4-6 weeks, only on one side of my head, and then go away for a couple months. I saw all kinds of doctors for that, had a brain MRI (normal) and finally figured it was part of my fibro.
I only take 5mg of cyclobenzaprine before bed when I'm in a flare. I don't take it during the day because it can make you sleepy, but some people do. Right now, I've been doing well for about six months. Either the LDN is helping me or maybe my fibro is in remission. But I plan to keep taking the LDN every day in case that's what's helping me and it has no side effects. I would definitely try it. I don't believe it's hard on the stomach since you take such a low dose. The only issue is that it's not instant relief since it takes a while to work up from the low starting dose to the maintenance dose, usually 4.5mg a day. Once on the maintenance dose, it can take a couple months to notice improvement. I've experienced no negative side effects. The only negative is the cost (about $1/day), but if it ends up helping you, it's priceless to feel better.
Also, I started taking 300mg of magnesium glycinate a couple hours before bed. An article I read on-line said it "may help alleviate symptoms of fibromyalgia by supporting muscle and nerve function, potentially reducing pain and improving sleep quality. However, more research is needed to confirm its effectiveness specifically for fibromyalgia." I truly believe it's helping me with relaxation and sleep. The 300mg dose is the RDA for women, so it's safe to take. I buy it on Amazon and take 2 capsules to reach the 300mg dose vs taking one huge pill. I also started taking vitamin C and B complex.
As far as Tonmya, here is an article by Depork Chopra, a licensed physician who's practiced as an endocrinologist and is known for his work in alternative and holistic health. He claims Tonmya is no better than cyclobenzaprine (also known as Flexeril). Tonmya is very expensive vs cyclobenzaprine, which is available as an inexpensive generic. https://www.painri.com/post/tonmya-tm-the-new-drug-for-fibromyalgia-is-no-more-useful-than-flexeril-tm