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Fibromyalgia worsened since Covid

Fibromyalgia | Last Active: 2 days ago | Replies (7)

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My first bout with Covid in 2021 triggered my fibromyalgia. Five days after Covid I woke with terrible all over body pain that lasted for weeks. At first my doctor thought it was Covid symptoms, then long-Covid and then he thought it was all in my head because all bloodwork came back normal. After seeing many doctors, I was finally diagnosed with fibromyalgia a couple years later. Looking back, I think I had fibromyalgia for many years but it only flared up for a couple weeks during season changes.

When I'm in a flare, cyclobenzaprine 5mg at night, helps me sleep. But what has really helped me with pain and sleep issues is low-dose naltrexone. I had to see a pain clinic to get my prescription but now my regular doctor prescribes it. I take a 4.5mg tablet after breakfast. It must be compounded at a special pharmacy and isn't covered by insurance. I think it costs me $50-60 a month. You have to build up to the maintenance dose slowly and then it can take a couple months to help. There are many articles on-line about it, here's one: https://www.fibromyalgiafund.org/giving-ldn-your-best-shot/

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Replies to "My first bout with Covid in 2021 triggered my fibromyalgia. Five days after Covid I woke..."

@daisy17 my bloods have all come back normal too, hence the diagnosis of Covid worsening my fibromyalgia. I’ve read that Tonmya is Cyclobenzaprine but it’s taken sublingually at a different dose. I’ve been told about low dose naltrexone also, so that’s helped you more than the cyclobenzaprine?

I’m already taking anxiety meds and monthly migraine injections, I don’t wish to take so many medications. I need to make sure if I do take anything extra, it’s the right one for me and my pains 😓 with few side effects. I’ve been procrastinating taking the medication for my slow gut, but the natural supplements haven’t been helping so at some point I need to start those. I also need to check that low dose naltrexone doesn’t affect the gut, if it does I’ll be told to avoid taking it. I didn’t actually check that with Tonmya 🤦🏻‍♀️