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Primary Myelofibrosis with JAK2: Anyone have Ojjaara (momelotinib)?

Blood Cancers & Disorders | Last Active: Dec 30, 2025 | Replies (28)
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@colleenyoung
My husband took Ojjaara - was very $$$ and didn't help at all. He had Myeloproliferastiv - MPN
blood cancer. His cancer was a result of Agent Orange in Nam during the Tet Offensive.While in Nam he was in the RedCross Hospital-diagnosed w/a swollen spleen - but at that time they didn't know what had caused it. He died at age 80, so it took many years for it to culminate.

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Replies to "@colleenyoung My husband took Ojjaara - was very $$$ and didn't help at all. He had..."
hanya | @hanya | Dec 30, 2025

@way2sorry
I am very sad that you lost your husband because of agent orange ! OJJAARA may have been the only thing they had to try to help him! I have been taking it for almost three months and some positive results but very very slow progress
To give a chance to work for me , I must take it for six months. I have MF WHICH PROGRESSED FROM ANOTHER ILLNESS
I SURE HOPE AND PRAY THAT OJJAARA DOES HELP ME , not many options after this!
Again ! I am so so for your loss!! Hanya

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