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Side Effects starting on Camzyos
Hypertrophic Cardiomyopathy (HCM) | Last Active: 1 day ago | Replies (32)Comment receiving replies
I have been on Camzyos for about three weeks, 5 mg, and I was just trying to find out f the dizziness is ever going to go away, it is ruining my day every day, I cant do anything, and now I have symptoms of UTI and starting to feel SOB from doing almost nothing (putting laundry in the dryer from the washer). I cant live like this, I would much rather have the surgery. I cant wait to go to Cleveland in March.. Im sorry you feel bad, I hope it gets better for you.
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@cash298 , I've been reading your posts and feel so bad that you are having such a terrible time with Camzyos. We are all so different and no two people are alike and therefore no two people will have the same response.
You are an example of someone who is struggling with Camzyos and only recently began.
I am happy to hear that you have an appointment at a COE in March. That seems so far away right now. Sitting around for the next three months wondering what is going to happen next is certainly not a pleasant thought. No wonder you feel like you can't live like this.
You should not have to live like this in my opinion. Can you contact the Camzyos program through their link?
https://www.camzyos.com
I read on the site that you should call your provider right away if you experience any of these symptoms:
Get medical help right away if you experience new or worsening symptoms, including:
shortness of breath
chest pain
fatigue
racing heart (palpitations)
leg swelling
rapid weight gain
They also provide the FDA and BMS to contact:
Talk to your healthcare provider for more information about side effects. You may report side effects to FDA at 1-800-FDA-1088. You may also report side effects to Bristol Myers Squibb at 1-800-721-5072.
You have been a trouper being your own best advocate, but you certainly are not having a typical time here on this for only three weeks.
You need to keep pushing until you get answers. Camzyos is NOT for everyone!
Can you contact the prescriber again?