← Return to Visit to National Jewish Health in Denver, CO

Discussion
rozie83 avatar

Visit to National Jewish Health in Denver, CO

MAC & Bronchiectasis | Last Active: Apr 29 7:16am | Replies (152)

Comment receiving replies
Profile picture for mtinderscott2626 @mtinderscott2626

@kathyjjb I just got diagnosed, and my anxiety is crazy from worrying about this...and what doctor/center I should go to. The Big Three scare me. Can you comment on my main choices...Mayo Rochester or National Jewish Health, I have been a patient at Mayo, and my local pulmonary doctor is with MUSC in Charleston. I just got the bad news 12/23/25

Jump to this post


Replies to "@kathyjjb I just got diagnosed, and my anxiety is crazy from worrying about this...and what doctor/center..."

@mtinderscott2626 I would say NJH is the best and have heard from others that it has the best lab. I don't know Mayo's protocol but at NJH, I was there for 8 days of testing and appointments. I had a hospital room but was an outpatient, so I didn't stay overnight but in a nearby rental home. I was diagnosed with MABC which is more difficult to treat than MAC, so maybe you would stay less days. That said, you want to know the extent of your infection which is measured by: 1. the bacterial "count", 2. your CT scans, and 3. how you feel. People live with MAC for decades without treatment. Are you nebulizing? Did your CT show cavities? If nodules, the best thing for you to start with is nebulizing 2/day with 7% saline. Cavities are more difficult to treat. There have been limited studies that have shown 25% of those infected with nodular MAC have been able to avoid the "big 3" with nebulizing (7%, 2x/day). Portland is just wrapping up a study with a larger test population and hoping results will be published in the next few months. I was diagnosed with M. Abscessus, macrolide resistant, which is much more difficult to treat. Nebulizing has really helped me. I hope this message has helped. Good luck and keep us posted.

@mtinderscott2626 It appears from all I have been reading and hearing on the Mayo threads, and due to my experience at NJH, NJH does more tests to rule out other problems that might be contributing to the symptoms and BE.
I also think the Rochester Mayo may concentrate more on BE....but I am not sure of that.
NJH has concentrated on respiratory illnesses since the late 1800's. All my doctors in OKC had not recommended a specialty facility for BE but when I told them that I had made an appointment they all were highly in favor of the facility and my going.
My first visit was a bit over a week long and overall for me it was a seamless experience. I will say that in all medical things....be proactive...know who to call and when to call...... to understand all. Do not hesitate to call when in doubt or need information to make it a good experience to help yourself and...... they in the process.
Barbara