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joanmroby avatar

Anyone have idiopathic pancytopenia?

Blood Cancers & Disorders | Last Active: Jan 4 9:01am | Replies (33)

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Profile picture for Lori, Volunteer Mentor @loribmt

@harleewine First, let me thank you for your service in our armed forces. I’m so sorry to hear that you’re experiencing low blood counts, most likely in relation to this chemical.

Unfortunately Agent Orange was collateral damage for many of our soldiers. My bother served just a little earlier than your tour in 1960-61. He and his troop were doused with AO while on a training exercise. Many developed blood cancers, including my brother, who passed away only 4 years later from Hodgkin’s lymphoma at the age of 27.
Back then, the army denied any correlation between AO and cancer. But too many people have come forward over the years and it is now obvious that it is the culprit.
The side effects of this chemical have been studied over the years and there are clear links to the damage it can cause. Including but not limited to blood cancers, neurological diseases, heart related issues, birth defects and the list goes on.

The VA has a publication regarding the potential disorders brought on by exposure.
https://www.publichealth.va.gov/exposures/agentorange/conditions/
I typed Agent Orange into a search of our Connect site. Here are the results. As you can see, there numerous other members who were also exposed and having issues.
So please look through these to see if there are any that are relevant for you.
https://connect.mayoclinic.org/search/
Pancytopenia is a blood condition where not just one, but all your blood numbers are low. What type of treatment are you receiving for this? Is the VA helping with your treatment costs?

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Replies to "@harleewine First, let me thank you for your service in our armed forces. I’m so sorry..."

@loribmt I now have four conditions from agent orange that I am getting pension for at this time. My latest condition is a lameler hole in my left eye that will eventually lead to blindness. No treatment is offered by the VA for my low blood counts. There is no admission by the VA that they are caused by AO. My sympathy for the passing of your brother. Several of my co-veterans have died from various agent orange effects. I keep plugging away and try to keep a positive attitude. I am not going to give up and keep filing claims until I get 100% disability or die trying. Thank you for your comments and info. Harold