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DiscussionTonmya is a game changer for me!
Fibromyalgia | Last Active: 1 day ago | Replies (63)Comment receiving replies
Replies to "@daisy17 My doctor prescribed Tonmya but the cost will be over $400/month. I'm on Medicare and..."
There is an opportunity for savings at this link: https://tonmyasavings.com/get-started
I found this on the GoodRX page.
My wife has had mild fibromyalgia most of her life, but never progressed until about 20 years ago. Now she suffers considerable from it. Approximately 15 years ago, a doctor prescribed Savella to her (she's now 74) and it worked great!! However, after several months of use (and total relief) the side effects abruptly hit her, shortness of breath, very elevated BP, and increased heart rate. After the 2nd time unfortunately she had to quit the medicine. It worked great, but side effects were, for her, too significant.
Now, since taking the covid shots (first 3, to keep her nursing license, then quit) she has developed severe migraines. Never had them until after the shots. The migraines are MUCH worse than the fibromyalgia.
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@ericamonique Did you try arguing with the doctor? If they would prescribe Tonmya, what's the difference then in prescribing cyclobenzaprine as they are the same drug! I would see another doctor, go back to your regular doctor. It helps me sleep but didn't help much with pain as I didn't take it during the day because it can make you sleepy.
My doctor is always hesitant to renew my prescription due to my age (75) because they are worried it could contribute to falls. I have no risks for falls other than my age, so that is annoying. I take this shortly before bed and, at such a low dose with only one pill per day, it never makes me dizzy or unsteady on my feet.
Please ask your doctor about low-dose naltrexone. That has helped me the most. I had to see a pain clinic to get my prescription but now my regular doctor prescribes it. I take a 4.5mg tablet after breakfast. It must be compounded at a special pharmacy and isn't covered by insurance. I think it costs me $50-60 a month. There are many articles on-line about it, here's one: https://www.fibromyalgiafund.org/giving-ldn-your-best-shot/
Good luck.