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jennmoh3 avatar

Trying to go to work with fibromyalgia..

Fibromyalgia | Last Active: Jan 6 1:14pm | Replies (19)

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Profile picture for calmmylife57 @calmmylife57

Hi there,
I’m sorry to hear you’re going through this challenging time trying to get disability support and figure out what direction to take. Living with fibromyalgia can be tough, as it affects each person differently and manifests in a wide range of symptoms. I hope you find a positive outcome.

I live in the UK. I worked freelance for the past three years, but I was signed off by my GP for the past six weeks until next January. I have fibromyalgia, lumbosacral spondylosis with radiculopathy and hypermobility. I don’t know how I managed to work over the past three years, but being single, I had no choice but to go to work in excruciating neuropathic pain, chronic fatigue and other symptoms because I couldn’t afford to live on benefits. I didn’t realise that I would have received disability benefits and other support. Because that’s what we push through until our bodies can’t cope anymore.

Please get all the help and support you can. Don’t hesitate to ask the health professiosnals and Social Security,
questions even if they seem obvious, take someone with you if that's possible for support and to advocate for you. Take care and I wish you all the best.

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Replies to "Hi there, I’m sorry to hear you’re going through this challenging time trying to get disability..."

@calmmylife57 Thank you.. my family and I are fairly certain that I also might have lupus.. I definitely understand not having a choice but to try to keep working. I am also a single adult, so I get it. I've been extremely lucky in that my extended family have been so supportive. I do my best not to take that for granted. I would likely be living out of my car without them. But I also hate and feel extremely guilty for relying so heavily on them despite their reassurances.. and now I have to break it to them that the appointment we've all been waiting for with the new rheumatologist has been canceled because of the different insurance I have as of yesterday. We've been waiting 4 months for this appointment. Now I'll have to start looking for another new doctor. Staying positive is becoming increasingly difficult. Any suggestions for a rheumatologist would be extremely appreciated right now.