@freespirit60 so many “ologists” it’s hard to know what to ask for. They are all so narrowly specialized that they can appear to be uncaring, but I believe they are just trying to stay in their specialty lane. If the symptoms don’t fall into their specialty, I do wish that they would help us find the right physician.
Failing that, your PCP is the one to help narrow the focus.
My neuropathy is monitored and treated by a neurologist. I have sharp pain frequently in my feet. My hem/onc doc orders scans (CT or PET) every six months to ensure that I don’t have bone issues related to my MGUS.
We must advocate for ourselves in any medical setting. If you don’t get the answers you seek, ask for a phone conference with your doctor if you can’t get an appointment. Every hospital or big medical practice has someone to complain to. Ask who that is and speak to them.
Write your questions down. Take someone with you to your appointment. (when you are upset or anxious, it is easy to forget what it is that you’re being told. I always take someone with me who often have a much more accurate read of what was said in my appointment.)
I’m so sorry that you’re feeling isolated and without support from your medical team. Will you let me know how this goes for you?