Does anyone have anything to share on Neuroendoscopic SCLC?

Posted by guyjeff123 @guyjeff123, 1 day ago

Up until recently I have been posting under Blood disorders, because I was overloaded with IV iron infusions by a careless doctor who gave me 13 IV iron infusions over a 9 month period. He didn't check my ferritin level until after the 13th infusion. I lost a kidney 3 months after the last infusion. My ferritin level was 2149ng/ml. My pancreas atrophied in March of 2025. I was afraid it was going to my heart next, which would have been fatal. However, before it had a chance to, my Pulmonary Specialist was watching a 5mm node in my right upper lung near the side of my lung. He ordered a CT scan in early October, because the node almost doubled in size in about a month, to 7.4mm by 9.6mm. He biopsied it in mid November and when the pathology came back, he told me a had High Grade very aggressive small cell lung cancer and there was no cure.I was told Chemo could prolong my life to 7-8 months, but I'd be sick after the very first chemo session. With CHF, 1 kidney that is stage 3B CKD, and a host of other comorbidities, I probably wouldn't survive the Chemo. With No treatment, I was given 2 to 4 months to live, but I'd have some quality of life. I needed to say goodbye to my 3 grandchildren, ages 6,7, and 12 years old. They didn't get to say goodbye to their NaNa, who died on 7/5/2023. I'm in Hospice at home now and it's been over a month since I was diagnosed with the lung cancer and it had already metastasized to my Liver. I don't know how bad the end will be, but Hospice says I won't suffer, they'll keep me comfortable. If anyone knows anything about the progression to death from this cancer, I'd love to hear from you.
God Bless you all.
Jeffrey Guy

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Jeffery, I have no words of wisdom for you. I can only imagine and feel helpless. Bless you for sharing your story. May you find the comfort and peace that you deserve. Your memory will live on in your grandchildren.

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Profile picture for wklapp @wklapp

Jeffery, I have no words of wisdom for you. I can only imagine and feel helpless. Bless you for sharing your story. May you find the comfort and peace that you deserve. Your memory will live on in your grandchildren.

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@wklapp, Thank you for responding. I wasn't really looking for any words of wisdom, but I believe, as you said, that my memory will live on in my grandchildren. I have been the main stable influence on them in a house where very little stability exists. Their mother, J, does the best she can with what she has to work with. I love her deeply for that. She's their safe place. Thanks again for your response. God bless you.
@guyjeff123

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