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Moderator

Headache and Migraine Group: Let’s connect

Posted by Lisa Lucier, Moderator @lisalucier, Feb 27, 2025

Welcome to the Headache & Migraine support group on Mayo Clinic Connect.

If you or someone you care about has headaches or migraines, this is a great place to talk with others with similar experiences. It’s a welcoming forum to learn from each other and share stories about challenges, coping strategies, setbacks and what helps.

Take these steps to participate in the group:

  • Follow the group.
  • Browse topics.
  • Use the group search to find answers to your questions.
  • Introduce yourself.

Pull up a chair and chat. Why not start by introducing yourself? What is your experience, or your loved one’s experience, living with headache or migraine (i.e., what type, how long since diagnosis, how it’s managed)? Have a question, tip or story to share?

Interested in more discussions like this? Go to the Headache & Migraine Support Group.

Profile picture for rjdowdell25
rjdowdell25 | @rjdowdell25 | Dec 1, 2025
In reply to @lisalucier "@rjdowdell25 - sorry to hear you've had headaches for a long time and they have started..." + (show)
Profile picture for Lisa Lucier, Moderator @lisalucier

@rjdowdell25 - sorry to hear you've had headaches for a long time and they have started occurring daily.

I found an article in Neurology - Clinical Practice about the topic you mentioned:

- Use of Acid-Suppression Therapy and Odds of Migraine and Severe Headache in the National Health and Nutrition Examination Survey https://www.neurology.org/doi/pdf/10.1212/CPJ.0000000000200302

Have you stopped any antacids since yesterday? If so, are you having any stomach acid problems since then?

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@lisalucier Thank you so much for sending the article 💕

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duchess926 | @duchess926 | Dec 16, 2025
In reply to @docb99 "There are multiple Botox injections done at once in the forehead, temple, neck, shoulder areas. They..." + (show)
Profile picture for docb99 @docb99

There are multiple Botox injections done at once in the forehead, temple, neck, shoulder areas. They are quick pin pricks. I don’t find it painful but some might.
The first injections did very little. The morning headaches were a bit less painful.
The Botox seems to get less effective after about two months.
The second injections have helped. I am not waking with headaches daily and when I do they are less intense. I am at about two months since the second set and effectiveness may be fading.
I’m due for a third set in mid April.
It is not cosmetic Botox but it does affect your muscles. My right eyebrow gets raised while my left eyebrow doesn’t. I’ll ask my NP next time. My NP said there can be eyelid droop but I haven’t had that.

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@docb99 I have also done the Botox injections to the head. I think it’s about 31 injections or so. They are given every three months because that’s about when the effectiveness wears off. I have had my second round and it’s gotten better and overtime each round gets stronger and better and much more effective. I’ve heard from people who have been doing this for quite some time and are very pleased with the results. I plan to keep doing this.

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2 replies
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Jody aka mojo244 | @mojo244 | Dec 24, 2025
In reply to @duchess926 "@docb99 I have also done the Botox injections to the head. I think it’s about 31..." + (show)
Profile picture for duchess926 @duchess926

@docb99 I have also done the Botox injections to the head. I think it’s about 31 injections or so. They are given every three months because that’s about when the effectiveness wears off. I have had my second round and it’s gotten better and overtime each round gets stronger and better and much more effective. I’ve heard from people who have been doing this for quite some time and are very pleased with the results. I plan to keep doing this.

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@duchess926 I’m in my 3rd year and it took a year to feel relief and then after 2 years the relief has been slowly slipping away and now I’m almost back to 24/7 9-10 pain.
Hang in there though because many find great relief from BOTOX.
Jody

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1 reply
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duchess926 | @duchess926 | Dec 26, 2025
In reply to @mojo244 "@duchess926 I’m in my 3rd year and it took a year to feel relief and then..." + (show)
Profile picture for Jody aka mojo244 @mojo244

@duchess926 I’m in my 3rd year and it took a year to feel relief and then after 2 years the relief has been slowly slipping away and now I’m almost back to 24/7 9-10 pain.
Hang in there though because many find great relief from BOTOX.
Jody

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@mojo244 - Well not exactly the update i wanted to hear but I’m hoping for good results… most recently I had a very bizarre problem with my doctor. Apparently, he was under a lot of pressure to do a lot of Botox patients in a day and instead of being a little bit more gentle, he was very rushed through the procedure and kind of randomly and very fast stabbed me all over the head. I did end up with a lot of pain in another week and ended up having to go to an emergency room in a hospital. I needed to be put on intravenous painkillers. It’s been a few weeks since the reaction and I think it’s just starting to calm down. i’ve also gone through another procedure for nerve pain. I’ve had trigeminal nerve pain caused by a dentist. but through my own research, discovered a wonderful nerve pain procedure called Scrambler technique….also known as Calmare Therapy…non invasive and not painful….

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2 replies
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Jody aka mojo244 | @mojo244 | Dec 26, 2025
In reply to @duchess926 "@mojo244 - Well not exactly the update i wanted to hear but I’m hoping for good..." + (show)
Profile picture for duchess926 @duchess926

@mojo244 - Well not exactly the update i wanted to hear but I’m hoping for good results… most recently I had a very bizarre problem with my doctor. Apparently, he was under a lot of pressure to do a lot of Botox patients in a day and instead of being a little bit more gentle, he was very rushed through the procedure and kind of randomly and very fast stabbed me all over the head. I did end up with a lot of pain in another week and ended up having to go to an emergency room in a hospital. I needed to be put on intravenous painkillers. It’s been a few weeks since the reaction and I think it’s just starting to calm down. i’ve also gone through another procedure for nerve pain. I’ve had trigeminal nerve pain caused by a dentist. but through my own research, discovered a wonderful nerve pain procedure called Scrambler technique….also known as Calmare Therapy…non invasive and not painful….

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@duchess926 dang sorry for all of that!
The injections are done pretty quickly though as they move around the head face and neck, I guess we all probably get use to it🤷‍♂️
I hope you find resolve!
MOJO

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rjdowdell25 | @rjdowdell25 | Dec 26, 2025

I’m hoping to get Botox injections again. I had them in Maine and Florida and they helped my headaches a lot. I see the neurologist on 1/6/26 and he will discuss it. I now live in NC and so lucky to have had this doctor recommended. I’m crossing my fingers that I get the same results as in my younger years. I’m 79 now and just finished a Medrol Dosepak to break the cycle. I’ve kept a diary regarding my daily headaches. So here’s hoping 🙏🏻

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mbixler | @mbixler | Dec 26, 2025
In reply to @duchess926 "@mojo244 - Well not exactly the update i wanted to hear but I’m hoping for good..." + (show)
Profile picture for duchess926 @duchess926

@mojo244 - Well not exactly the update i wanted to hear but I’m hoping for good results… most recently I had a very bizarre problem with my doctor. Apparently, he was under a lot of pressure to do a lot of Botox patients in a day and instead of being a little bit more gentle, he was very rushed through the procedure and kind of randomly and very fast stabbed me all over the head. I did end up with a lot of pain in another week and ended up having to go to an emergency room in a hospital. I needed to be put on intravenous painkillers. It’s been a few weeks since the reaction and I think it’s just starting to calm down. i’ve also gone through another procedure for nerve pain. I’ve had trigeminal nerve pain caused by a dentist. but through my own research, discovered a wonderful nerve pain procedure called Scrambler technique….also known as Calmare Therapy…non invasive and not painful….

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I strongly recommend that you find a new Neurologist. There is no excuse for what that doctor did.

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258068802 | @258068802 | Dec 28, 2025

I am from Pakistan
"My son, who is 23 years old, has migraine. It starts every day at 5 PM and lasts till 1 AM. He takes a tablet, gets some relief, but then it starts again.

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3 replies
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258068802 | @258068802 | Dec 28, 2025
In reply to @258068802 "I am from Pakistan "My son, who is 23 years old, has migraine. It starts every..." + (show)
Profile picture for 258068802 @258068802

I am from Pakistan
"My son, who is 23 years old, has migraine. It starts every day at 5 PM and lasts till 1 AM. He takes a tablet, gets some relief, but then it starts again.

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Please suggest medicine for my son please

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1 reply
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indyanthony | @indyanthony | Dec 28, 2025
In reply to @258068802 "I am from Pakistan "My son, who is 23 years old, has migraine. It starts every..." + (show)
Profile picture for 258068802 @258068802

I am from Pakistan
"My son, who is 23 years old, has migraine. It starts every day at 5 PM and lasts till 1 AM. He takes a tablet, gets some relief, but then it starts again.

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That sounds really difficult! Is he under the care of a neurologist? I’m not familiar with the medical system in Pakistan. What all has he tried, besides the tablet?

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