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People will disagree but the only thing that helped me was long term high dose valacyclovir. I was taking 1g every 8 hours for probably 1.5 years before I started feeling normal (Maybe even longer. I'd have to look back to be sure). Coincidentally, I watched my EBV EBNA result drop from 600 to around the 250 range and that is when I started feeling better.
It's not a cure. I stopped cold turkey for about 9 months and started to feel some of the symptoms start to return. Started 1g daily which helped but my EBNA was still rising and I was still feeling some symptoms. I talked my doctor into 2g daily and all my numbers improved. I could probably get away with 1.5 total grams a day but I don't know. I was also weighing about 285lb at the time.
It was a long time of steady decline in my case and the recover was just as slow.
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@kenforce
I appreciate the input. I believe my situation has also been a slow decline since 2020 that was then put into hyperdrive in 2024. Did you take any supplements or change your diet/activity level? I understand it is going to be a slow recovery; however, how long did it take you to function well enough to return to work/have a semblance of a life? I think I can probably “deal” if I can get 20% improvement. I know I won’t be firing on all cylinders but not being able to do more than one task a day without severe exhaustion and pain is doing a number on my mental health.