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← Return to Infections while on Camzyos?
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@lisa4585 I don’t take anything else associated with UTI, I spoke with the HF center and the NP wouldn’t even talk to me, she had her secretary tell me there is no way Camzyos can be associated with UTI, I’m mad about it. She is wrong. I told the secretary to tell her she should be more concerned, as it is very dangerous to have infection while on Camzyos, she said call your primary. I did the office and was told they were going to let her know as urgent, not a single word back. This is why I’m going to Cleveland in March, my cardiologist refuses to do an urgent consult so I can’t get in until March. I am a Dr and have completed the NP program at George Washington University and I hate how the medical profession has become
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That has to be so frustrating! And also infuriating to be dismissed in those ways! & so worrisome. I’m sorry you’re not getting better care.
I wonder if the specialty pharmacy that you are getting your Camzyos from would be more responsive? The pharmacist team at the specialty pharmacy I am getting mine from has seemed very attentive, and expressed availability to talk with me at any time about any concerns, even 24/7.
Once you are taking Camzyos there is that “Patient support program “ — “created to help support you and answer questions during your treatment“ they have what they call a nurse navigator , who supposedly can help answer questions you have : 855-226-9967 -
8 AM to 8 PM Eastern time Monday through Friday. I have not used that resource so not sure how exactly that works or if it’s any good or not?