Hi @daelitesmom,
I prefer to decline Hydrea as well and have never taken it. I take daily low dose aspirin as I do have high platelets, but I cut back when I had surgery on my Melanoma insitu the dermatologist found recently on my facial cheek on December 4 and then had more removed December 19. That second procedure had good result which came back clear of any cancer cells thankfully. I have CALR1 mutation. Please let me know what you find out about your platelet level after more magnesium. I just take a daily multiple vitamin which I assume has a small amount of magnesium. No one ever suggested magnesium to me. Did you have lab work first for magnesium level that found it low? My O/H did lots of blood work on me but no vitamin level checks on me. I am changing to a new insurance January 1 as I am not happy with what I chose at 65. They diagnosed me January 2O25 with MPN but changed which one February 2025 when I asked how they knew and they did bone marrow biopsy. I have no symptoms still and feel fine. My pelvic CT scan they ordered showed my spleen size normal. My BP is normal daily as my current primary doc has me take it each morning, but my systolic BP spikes at doctor appointments. After my terrible choice for a first primary doc who canceled four appointments with me and never saw me but prescribed hypertensive meds for me without ever seeing me, I found this different decent primary doc who diagnosed me with White Coat syndrome. I hope I made a good choice for my new primary doc with the new insurance I chose for 2026. I would just like to start over and hope they address my nonpainful right ring finger very large proximal phalangeal joint which was my chief complaint when I started with my former insurance. I figure no insurance plan could worse that what I chose formerly. I guess they were decent in the sense they ordered tons of tests on my that were covered and not out of pocket. They just did not listen to what my chief complaint was and found other things to focus on.
Thanks for reading my complaints.
Wishing you and all others in this group as the best in 2026!