← Return to Seeking advice: MGUS and osteoporosis with severe bone pain?

Discussion
Comment receiving replies
Profile picture for Ginger, Volunteer Mentor @gingerw

@freespirit60 Let's start with the diagnosis of osteoporosis. Has your primary doctor referred you to an endocrinologist or rheumatologist? If not, I would ask for that, to get a informed decision on how to proceed. Then, make sure that specialist knows you are diagnosed with MGUS before starting any treatment. And also take into account any other health concerns going on right now.

Your hemo/onco doctor is looking at what is his specialty, and may not have the background to adequately address the osteoporosis. I wouldn't expect him to. But I sure hope he would work with your rheumatologist to make sure it's a team effort in dealing with your own unique situation, for treatment. In my experience, I expect and demand my team of primary care plus various specialists to work together for my best health. I was recently diagnosed with osteoporosis, like you, and will be addressing the best way to proceed at my next appointment in mid-January, since I am under treatment for multiple myeloma and also do dialysis for my kidneys.

I'd really like to hear that your primary will refer you out. Will you let me know when that happens?
Ginger

Jump to this post


Replies to "@freespirit60 Let's start with the diagnosis of osteoporosis. Has your primary doctor referred you to an..."

@gingerw Thank you Ginger. Yes, my Primary Care is the best that have ever happened to me. She referred me to Endocrinologist immediately when I was diagnosed in 2021. My Endocrinologist is a very good and caring provider too. She started me on Prolia in 2024. I have a follow up appointment with her in February.