Replies to Taking Remlivid for the 2nd time this year. First time, NO effect…different doctor suggests cutting dose….

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Blood Cancers & Disorders | Last Active: Jan 11 9:18pm | Replies (83)

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@jeffreykassover1

Taking Remlivid for the 2nd time this year. First time, NO effect...different doctor suggests cutting dose. Waiting to see if any effect. Putting on tons of water weight...concerned how it affects both the Remlivid and my heart!.

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Replies to "Taking Remlivid for the 2nd time this year. First time, NO effect...different doctor suggests cutting dose...."

montauk | @montauk | Dec 28, 2025

@jeffreykassover1

I was on Revlimid for a total of 4 months straight with pills every day ( no breaks).

Started at 5 mg for 2 months with no affect and then switched to 10 mg with zero affect.

Doctor discontinued me because of failure to work.

Then went to Rebolyl ( spelling) .
I have had 3 shots at 3 week intervals and scheduled for 4 th shot this New Year’s Eve morning.

So far the first 3 shots have done nothing.

My weight has stayed static at 160 pounds.

My biggest complaint is very dizzy. It feels like vertigo..

I test myself in a blood pressure cuff and have normal blood pressure.

QUESTION:

Is you weight gain from drug induced holding water or an calorie consumption increase ?

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