Wow !
With 2 units of blood tho highest I ever got was 9.
Can you honestly say you feel tremendously better, or is it better, but just marginally ?
The reason I ask is my dream, once in my remaining lifetime I would love to see what 10 or 11 hemoglobin would feel like from my normal low value of 6.9 to high transfused value of a high of 9.0.
My levels go up EXACTLY one digit per transfusion unit.
You had a marked higher elevation per 2 units infused.
Sometimes you get a transfusion which it right at its expiration date limit which already had hemoglobin degradation,
So glad to hear you are in the 11’s.
Let me know how much better you feel, and is it real as measured by significant energy improvement or more psychological .
You went up so much in hemoglobin !
I hope it stays above 9 for as long as possible.
That is fantastic !
Merry Christmas.
@montauk I felt really good the first few weeks then I settled into the 11.3. I would definitely pursue the clinical trial. I have Intermediate risk Myelofibrosis - MPL with an adverse mutation - SRSF2. I’m headed for a BMT. I’m 66 now so most likely before I’m 70.