1. < Polymyalgia Rheumatica (PMR)
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PMR relapse symptoms

Posted by abbeyc @abbeyc, May 28 9:11am

For anyone who had PMR and tapered off steroids. Did your PMR come back? How quickly? And did it feel the same as the first time?

I’ve been off steroids for 1 month and feel a lot of stiffness which has grown increasingly each day. Mostly in hips, thighs, shoulders and hands as stiffness. This is not the same as my original full blown PMR. The stiffness is different every day and the worst only of it lasts a short while until I have moved around. But now the stiffness is lasting more throughout the day as a more mild annoying stiffness making it difficult to get around.

Wondering if others post PMR have similar issues and considering this to be a PMR flare.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

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abbeyc | @abbeyc | 1 day ago
In reply to @dkucan "I’m in the process of decreasing my prednisone I have found that my pain is increasing..." + (show)
Profile picture for dkucan @dkucan

I’m in the process of decreasing my prednisone I have found that my pain is increasing my doctor suggested I up at 1 mg but I’m still in a lot of pain
Actually, my pain is mostly in my shoulders and arms, but it does resonate down to my legs, it’s lasting all day

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@dkucan from speaking with several doctors the conscientious is if the pain lasts more than a short time in the morning it’s likely still PMR.

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shjort | @shjort | 19 hours ago

Do you have a rheumatologist you can ask? I have not got to a point of getting off the steroids yet.

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