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This and That and Talk - My Transplant
Transplants | Last Active: Aug 14 9:57pm | Replies (1677)Comment receiving replies
Hi everyone...i am just starting on the journey of becoming a living liver donor for my husband. He is from MN and I am from Florida. We have been living in Florida since early 2015 when my hiusband so graciously agreed to move to Florida to care for my Dad who was at the end stage of his battle with cancer. After Dad passed in March 2015 there was no question we would stay here to look after my Mom who was beginning to show signs of dementia. Two years and 3 months later my husband is battling for his own life and I am hoping i can be his living liver donor. The first place i contacted was the Mayo in good old MN. Of course our insurance has changed and so has a lot of things but family support both in Miami and in MN has increased. Any words of support would be greatly appreciated! Thank you to evrryone who jas gone down this scary process before us. Bless all of you.
Replies to "Hi everyone...i am just starting on the journey of becoming a living liver donor for my..."
@lexiopo, I would like to welcome you to our discussion. I am happy that you have joined us. I am a liver/kidney transplant recipient (2009). I received my organs from an anonymous deceased donor. I have been in your shoes with the personal parental experiences. In fact my own mom had dementia, and her husband/caregiver died when I was going thru my own journey. You have my prayers and my support. I want to add that having the support of your family and friends is extremely important for both you and your husband as you go thru this process.
I look forward to walking with you, if you want me to. I extend my hand for support.
Rosemary
Thanks so much Lynn. I have not talked to anyone yet, but I am just now catching up on emails and messages. I really appreciate your advice. God bless you and I pray you get your kidney!
Rosemary thank you so much for your kind words. Your reply brought me to tears. I feel so overwhelmed at times it is nice to have someone to talk to. I would be honored to walk with you! God Bless.
@lexiopo I hope this alerts you that you have a message. It is not coming up with your name and I have checked and believe I have your name spelled correctly.
Your husband is very fortunate to have you willing to be his donor. Are you and he the same blood type? My husband and I are but he assumed he would not be considered due to age and having had prostrate cancer.
Mayo is amazing. If I had gone much longer waiting for a liver at Mass General I would have started the process to get listed at Mayo but my transplant happened sooner than they anticipated for some happy reason. Happy for me but obviously not so for the donor's family.
JK
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@lexiopo - Welcome! So glad you found this chat. I don't have a lot of practical advice as I am waiting for a living kidney donor but I do know The Mayo Clinic is a wise choice for treatment. How great that both of your homes are also Mayo locations! Have you met with the transplant team yet? If not, when is your appointment? I'm sure you wanted it yesterday. There are at least two people, @rosemarya and @contentandwell who have received liver transplants but I'm not sure if they were from living donors. They are active in this chat so I'm sure they will reach out once they see your post.
Hang in there!