← Return to Debilitating multisystem dysfunction from diverticulitis surgery

Discussion
Comment receiving replies
Profile picture for Cheryl, Volunteer Mentor @cehunt57

Devin @djfilipiak your case sounds complicated to say the least! I have a history of gastroparesis due to autonomic neuropathy complications of diabetes and I have also been diagnosed with diverticulosis/ diverticulitis that seems to be genetic. Both my dad and grandfather had it. From a dietary standpoint the two conditions respond best to different & opposite things. Gastroparesis does well with small, frequent, low fiber snack like meals. Diverticulosis/ diverticulitis does better with high fiber. So the balancing act can become frustrating. But my situation has never involved surgery and for that I am thankful. It sounds as though you have endured several unsuccessful surgeries. It is very disappointing that Mayo “denied your case”. I think the world of them and thought they would be the ones to help if no one else could. I’ve always had the impression that Mayo enjoys a challenge and I would be inclined to keep asking if I were you. However I’ve personally experienced that they don’t like to be the ones to have to fix others’ mistakes so maybe there’s that. Whatever you do I would look to a large teaching facility for your care and further treatment.

Jump to this post


Replies to "Devin @djfilipiak your case sounds complicated to say the least! I have a history of gastroparesis..."

@cehunt57 ugh that all sounds frustrating and you are very lucky to have no had to deal with surgery. I will say, my diverticulitis surgeries, as bad as they were at the time, gave me 5 pretty decent years I wouldn't have had otherwise. Unfortunately, it's the next 5 that I started feeling the effects of the first 5 years of healing! Lol. And more university type clinics or study clinics is my plan. But unfortunately, now I am also finding limitations on NYS Managed Medicaid. So, that adds another layer/filter on selections, even if I wanted to consider self pay options. We'll see how long my energy can last this time around 😔