@daunalee

Have you ever been diagnosed with fibromyalgia before Covid?

I saw a rheumatologist and spinal surgeon a few weeks ago, the rheumatologist confirmed I have fibromyalgia and that it’s definitely been aggravated with my Covid infection in June 2025. I have flare ups during this 5 month flare up where the existing pains worsen, and daily activities become even more challenging. The spinal surgeon confirmed I’m not going crazy, he told me he works with a rheumatologist specialising in Long Covid. From what I’m being told there’s no treatment or cure for fibromyalgia, and any viral infection including Covid can worsen symptoms. I’m trying to be extra careful not to get sick, it’s very limiting. I’m also trying to get ahold of the new drug Tonmya from the US, everything else I’ve tried in the past hasn’t helped, and since the 3rd Covid infection, my pains have spread. This last week the pains have spread to my lower legs and feet, it mostly feels like muscle aches but I’m having some kind of tingling as you mention which feels like nerve pain 🙁 it’s very uncomfortable, I don’t sleep well at all, and absolutely nothing relieves the discomfort 😓 massage helps in the moment, but I haven’t found anything that gives long lasting relief 😞

The rheumatologist gave myself and my mother a pamphlet on fibromyalgia, he said I most likely know more about it then he does. It’s important to pace yourself, not exercising makes it worse, and overdoing it makes it worse, finding the right balance is quite hard. Listen to your body, rest when you need to, sadly it’s one day at a time for now. Have you seen a rheumatologist to give you a proper diagnosis? Please keep me posted!