New Bronchiectasis diagnosis - need advice

Posted by mikejj244 @mikejj244, Dec 1 6:29am

I believe I have had Bronchiectasis for years. I started having exacerbations with pain, extreme fatigue, tightness etc. Pulmo doctors just kept on giving me more and more Asthma medications ( Inhaled steroids, tezspire, formotorol etc etc) which worked somewhat for a while then stopped pretty much. Specialist after specialist were mostly clueless, and just tried to blame me, as if I was not doing my medications etc. I am now seeing a Pulmo at UTSW in Dallas and, I am now asked to produce sputum culture at home. I have not been able to do so. It is so tight in there and very little comes up at a later time, when I "clear my throat". I am about to be on medicare and am terrified by what may lie ahead. I am currently not on any direct treatment for Bronchiectasis other than saline because I have not submitted culture. I was so thankful I found this group to hopefully finally talk with people who know what I am dealing with. Any and all advice etc. is greatly appreciated.

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@mikejj244
Dr. Devanshi Mehta, MD
Pulmonary & Critical Care
Riter Pulmonary Center
UT Health Tyler
11937 US-271
Tyler, TX 75708
903-877-7916
https://uthealtheasttexas.com/find-a-provider/results
Carolynn Peterson
Patient Hospitality Coordinator
NTM and Bronchiectasis Clinic
UT Health Tyler
903-877-2899

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@ejr I contacted Carolynn Peterson and I am scheduled for late January for my first appointment. I will be doing a new breathing test and CT scan there before the actual appointment. I am relieved and anxious at the same time. Afraid of what they might find and afraid to not find out as well. I will be seeing Dr. Mehta. Wish me luck and Merry Christmas to everyone!

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