Please let me how morphine worked for you. Need advice

Posted by abbybarnes @abbybarnes, Nov 16, 2025

J have Erythromelalgia- Man on Fire Syndrome. I have been taking 250 mgs of Tramadol for more than 10 years now without numb benefit.

Can you please let me know how morphine works for you and what dose you take and how much you had to beg your doctor to prescribe it? Thank you so much for your advice!

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That’s sounds like a very painful and emotionally distressing experience to endure. My experience with morphine is 99% back related and 100% effective for me. I have a very long history with pain and morphine. After 14 back surgeries, 2 of which (2015) developed FBSS, failed back surgery syndrome and a complete titanium spine, It resulted with me in lifelong level 9 chronic pain. I’m on my last pain regimen of my life. I have an intrathecal drug delivery system implanted in me. It takes me from a frenzied state of level 9 to a manageable 5-6. I get 12.17 mgs. In 4 bolus’s and the minor 24 hr. Flex dosing. Pumped into my intrathecal space directly into the central spinal fluid. It doesn’t cross the blood brain barrier so there’s no feeling of euphoria. Morphine is a lifesaver for me. I read someone on this thread say they rather lay there writhing in pain than take morphine. I ask her, what’s the longest consecutive days of house bound, bed bound writhing in pain have you actually endured? I’ll tell you mine. 51 days in suicidal pain.
So morphine saved my life.

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@abbybarnes so how did it work out? Did you decide to try taking morphine or something else?

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Profile picture for chebo1954 @chebo1954

@loriesco I’m with you on the Percocet- course they think you’re a drug addict but it works, and I could care less what the dr thinks. Got to go to hospital sometime because that’s not enough but with stage 4 lung cancer and stage four prostate cancer that’s got into the bone- well I think you get my drift

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@chebo1954 my dear lord you have too much on your plate. I hate that they put drug restrictions on stage 4 patients. It’s inhumane. Morphine works for a lot of people but it works super fast, kills pain (not for me), then burns out pretty quickly. If I’m given dilaudid it hits slower pain goes away, and stay gone for a long time. It’s stronger than morphine but the pharmacological elements works better some better.,

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I had a ruptured lumbar disc and multiple car accidents, so I've been on extended release morphine capsules twice daily more than 15 years. I also have another opioid and use CBD drops when I have pain flares.
I am 82 years old and also meditate and do Qigong.
All these have enabled me to drive short distances and walk at least twice daily. You tube has many videos to choose from to help lessen pain and improve my quality of life.
Good luck, Ron

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Profile picture for geezer43 @geezer43

I had a ruptured lumbar disc and multiple car accidents, so I've been on extended release morphine capsules twice daily more than 15 years. I also have another opioid and use CBD drops when I have pain flares.
I am 82 years old and also meditate and do Qigong.
All these have enabled me to drive short distances and walk at least twice daily. You tube has many videos to choose from to help lessen pain and improve my quality of life.
Good luck, Ron

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I am patient for long time and swim to help use muscles that are not being used Morphine is no miracle and allows me daily activities. I accept the fact pain never quits. Just helps me not suffer too bad on Morphine for 19 years j

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Profile picture for geezer43 @geezer43

I had a ruptured lumbar disc and multiple car accidents, so I've been on extended release morphine capsules twice daily more than 15 years. I also have another opioid and use CBD drops when I have pain flares.
I am 82 years old and also meditate and do Qigong.
All these have enabled me to drive short distances and walk at least twice daily. You tube has many videos to choose from to help lessen pain and improve my quality of life.
Good luck, Ron

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@geezer43 I am 76 with pain from disc herniations and disc degeneration with recent nerve ablation partly helping. I have been taking morphine at night and early morning. During the day I have a regular regime of Tylenol. My husband drives instead of me as my knee joints are wrecked and seize up later waking me in night. I feel shut in and wonder if I drive would any morphine in my bloodstream be risking problems or am I just over cautious.

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Profile picture for chebo1954 @chebo1954

@loriesco I’m with you on the Percocet- course they think you’re a drug addict but it works, and I could care less what the dr thinks. Got to go to hospital sometime because that’s not enough but with stage 4 lung cancer and stage four prostate cancer that’s got into the bone- well I think you get my drift

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@chebo1954
Looking forward to the day these doctors suffer as we do, only I bet they get meds that we can't.

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Profile picture for msmcecelia @msmcecelia

@geezer43 I am 76 with pain from disc herniations and disc degeneration with recent nerve ablation partly helping. I have been taking morphine at night and early morning. During the day I have a regular regime of Tylenol. My husband drives instead of me as my knee joints are wrecked and seize up later waking me in night. I feel shut in and wonder if I drive would any morphine in my bloodstream be risking problems or am I just over cautious.

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@msmcecelia unfortunately just sensible. If there were a crash the morphine in your system could be a major legal problem. Please be safe and careful.

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Profile picture for ailsas @ailsas

@msmcecelia unfortunately just sensible. If there were a crash the morphine in your system could be a major legal problem. Please be safe and careful.

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@ailsas you are absolutely correct. Any accident drivers are automatically tested for drink and drugs - certainly here in the U.K. I imagine it’s the same the majority of US states as well. Of course, any vehicle insurance would also be null and void under those circumstances.

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Profile picture for dollydutchgirl1946 @dollydutchgirl1946

@ailsas you are absolutely correct. Any accident drivers are automatically tested for drink and drugs - certainly here in the U.K. I imagine it’s the same the majority of US states as well. Of course, any vehicle insurance would also be null and void under those circumstances.

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@dollydutchgirl1946 drink and drugs are not automatically tested in the US. Alcohol: if it appears that the person has been drinking. Maybe we should have the UK laws but it would be state by state with a lot of howling.

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