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This and That and Talk - My Transplant

Transplants | Last Active: Jun 7 8:31am | Replies (1672)

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@rosemarya

@contentandwell, I believe you did exactly what any good patient would have done by asking about the medications. I also do this whenever in question. If my issue is directly related to the transplanted organs I go thru the portal to my nurse. She either responds, or she consults with a physician before responding. I have also felt the need on occasion to go beyond my local pharmacy to my specialty pharmacy at Mayo for advice. I feel that they have more experience with these immunosuppressant drugs and our condition. I have not found my locals to be out of compliance, but the peace of mind is worth it to me! Plus I am provided with a more detailed answer to my question. It is so-o-o hard to decide, but I prefer to err on the side of caution!
I had some minor athletes foot rash when I was in for my annual in April. Dermatologist said it is ok to use some of the over counter topical creams. He gave me some names, but I would need to go look them up. Recognizing that we are all under different caregivers, and have different situations, I believe that you are best to go to your provider.
JK, as far as the toenail thing - my husband and I have been surprised at the many peculiar things that we have ended up talking about during and since transplant. Often find ourselves laughing about it later.

I can understand your concern over the creatinine numbers. It is wonderful that the team at MGB will be in contact with you about it. I know that you will be happy to hear from them. Were your creatinine numbers stable before you changed your immunosuppressant meds? Were they 'normal'?
Rosemary

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Replies to "@contentandwell, I believe you did exactly what any good patient would have done by asking about..."

@rosemarya Thanks Rosemary. I have this feeling inside of me that I may be spending $499 that did not needed to be spent but I just do not want to chance not taking care of it if it is fungus.
JK

@contentandwell, I get the same feeling when I wake up at 2 AM with a rising temperature and uncontrolled shivering. Do I go to ER...at 2 AM??? Yikes. Yes, Hubby and I go...it's just not worth taking any chances.
Don't be so hard on yourself for taking care of you 🙂
Hugs,
Rosemary

@contentandwell - You are worth every cent!

@rosemarya and @contentandwell - Oh I"m learning so much from you guys and appreciate all I can take in now before I'm overwhelmed with the entire transplant process. Thank you so much for sharing!