Nerve damage effecting tongue, muscle, swallowing.

Good afternoon…. Since you were treated 10 years back I just want to ask if you are now cancer free despite the nerve damage now and how long did your dry mouth lasted. I just finished my chemo and radiation treatment in October but I still have sore throat plus blisters that occur sometimes on the palate of my mouth. And I am experiencing something like swollen neck and face.

@linda90 Good morning, Yes I'm cancer free... sorry to hear what your dealing with 🙁 at first I had really bad dry mouth I drank a lot of water. now I'm producing to much saliva now. My side effect we're nerve damage, which is now effecting my speech, nerves in tongue and the muscle in swallowing. I'm in speech therapy and on a feeding tube for now. working hard to get some normal back in my life. Take it slow, do your research and if you don't get your questions answer that makes sense to you keep knocking on different doors.
Stay strong you got this girl 🙂

Best
Connie (Oregon)

@alicia17frank keep us informed on your progress!

Will do have a goodnight 🙂

@mojo244 I will. I see another ent doctor today. Hopefully they can tell me something. I'll update everyone soon as I go

@mojo244 I sure will. I hope your doing ok

My cancer was also tonsil, 20 years ago. The side effects of the treatment, both radiation and chemo have been many. Recently in the last three years or so they seem to multiply at a quicker pace. One is the nerve damage in my neck and right arm and hand. I can still use the arm but I cannot lift anything or carry objects. In a couple weeks I have an appointment with a Pain specialist - but it really isn't the pain, it's the constant tingling and numbness.

@cskippy My cancer was tonsil cancer 20 years ago and over the years I have had numerous side effects. I am now on a feeding tube and have been since July 2024 because of aspiration pneumonia caused by swallowing issues. I've been eating nothing by mouth since April of this year. Lately I have been getting an acid taste in my mouth and it worries me as it seems I may have reflux while feeding and it might ruin my teeth. My speech has been effected and I notice my tongue doesn't work as well especially in the back. I have been given exercises that help a little. But my throat seems to be closing up back there. The dry mouth has caused gum recession too!

@omaest
I can resonate with your post. Radiation is the gift that keeps on giving. Argh. I take xylimelts for dry mouth and they are worth a try.

Good morning, I so glad that xylimelts help 🙂 First I want to apologize to you and the Support Groups family. I want everyone to know what's going on with me and my journey. Right now I'm making to much saliva flow... it's way to thick to swallow...I have try, but I start to gag like I'm going to get sick have to spit out. 🙁
Also if any body going through this, you're not alone hang in there, you're stronger than you think 🙂

Connie
(Oregon)