@abinoone
Actually, the fact that the results are the same whether they’re having radiation or surgery are mentioned a lot in the 10 pages previous to your comment. Too bad you couldn’t put in the link yet, but many of us are aware of it and tell people about it.
I’m not sure you noticed that the original question was December 2 and there were 10 pages of replies. Pretty sure he’s decided by now.
I picked surgery in 2010 and 3 1/2 years later it came back so I had radiation and it’s come back three more times since then but I’m still alive and I’ve been undetectable for the last 25 months. Surgery gave me 3 1/2 more years than I would’ve gotten with radiation since I have BRCA2, which causes my cancer to keep coming back. Didn’t find out about that till five years ago. For younger people surgery can make a lot of sense because you can have radiation after and the recurrence rate is pretty high.
@risa6069
At this point future treatment means I can be on a PARP Inhibitor when what I’m currently on (Orgovyx and Nubeqa) Stop working.
After that Pluvicto Would be a good move because it’s supposed to work better for people that have BRCA.
There are some new clinical trials going on testing people with PARP and Zytiga To try to stop the cancer sooner. I don’t know about how it will work, but it is trying to come up with a better answer.
The problem with a PARP inhibitor is that they caused a lot of problems with blood counts. White blood cells, red blood cells and platelets are affected quite a bit and can results in needing blood transfusions to continue the treatment.
You could get genetic testing to find out if it could be a factor. Does anybody else in your family have cancer? You can get it here for free, takes 2 to 3 weeks to get the results and a genetic counselor will call you. They will send you a kit that you return in the mail. You have to live in the USA to get this test for free.
Prostatecancerpromise.org
Don’t check the box that you want to have your doctor involved or it will greatly delay the test.
@risa6069
At this point future treatment means I can be on a PARP Inhibitor when what I’m currently on (Orgovyx and Nubeqa) Stop working.
After that Pluvicto Would be a good move because it’s supposed to work better for people that have BRCA.
There are some new clinical trials going on testing people with PARP and Zytiga To try to stop the cancer sooner. I don’t know about how it will work, but it is trying to come up with a better answer.
The problem with a PARP inhibitor is that they caused a lot of problems with blood counts. White blood cells, red blood cells and platelets are affected quite a bit and can results in needing blood transfusions to continue the treatment.
You could get genetic testing to find out if it could be a factor. Does anybody else in your family have cancer? You can get it here for free, takes 2 to 3 weeks to get the results and a genetic counselor will call you. They will send you a kit that you return in the mail. You have to live in the USA to get this test for free.
Prostatecancerpromise.org
Don’t check the box that you want to have your doctor involved or it will greatly delay the test.
@jeffmarc
Thanks Jeff for detailed answer. Yes father and brother history of pc. I am in NZ where you can also get tested for genetics with doc referal, for free. Thought it might be a good idea in case further treatment needed at some point. Currently just 9 weeks post RARP and undetectable so far!
@jeffmarc
Thanks Jeff for detailed answer. Yes father and brother history of pc. I am in NZ where you can also get tested for genetics with doc referal, for free. Thought it might be a good idea in case further treatment needed at some point. Currently just 9 weeks post RARP and undetectable so far!
I had the same problem 4 months ago. I had three doctors giving me three different approaches. I'm 74 and opted out of the surgery based upon my Oncologist not seeing any body of evidence indicating a better outcome with surgery compared to doing Radiation x 20 and Lupron ans Abiraterone for two years. I would get as many qualified opinions as possible based on your individual cancer type and any other medical condions or health risks. I finished my radiation and I've been on the mentioned meds + prednisone for 2 months. I had a 10 something psa now it's barely detectable. Hope that helps some. Surgeons like to cut, Radiologist like to radiate and Oncologists like to medicate. I wish you well in your decision making.
I had the same problem 4 months ago. I had three doctors giving me three different approaches. I'm 74 and opted out of the surgery based upon my Oncologist not seeing any body of evidence indicating a better outcome with surgery compared to doing Radiation x 20 and Lupron ans Abiraterone for two years. I would get as many qualified opinions as possible based on your individual cancer type and any other medical condions or health risks. I finished my radiation and I've been on the mentioned meds + prednisone for 2 months. I had a 10 something psa now it's barely detectable. Hope that helps some. Surgeons like to cut, Radiologist like to radiate and Oncologists like to medicate. I wish you well in your decision making.
@jake7777
At your age, that’s usually a good decision. I was diagnosed at 62 and had surgery when it came back 3 1/2 years later I was able to have radiation. I’m still here at 78 and I’ve been undetectable for the last 25 months. It’s probably going to come back since I have BRCA2 a genetic problem that causes the cancer to keep reoccurring. My brother had radiation at 77 and he’s now 80 and doing fine, No genetic issues.
11 years after I was diagnosed, I went on ADT plus abiraterone. Before, then, I never had high blood pressure, Abbie Gave me high blood pressure, which I still have five years later. Keep an eye on your blood pressure. It also caused me to have multiple Afib Events and 2 1/2 years after I started taking it I had one that was real major and my oncologist said no more Abbie. I switched to Darolutamide And have been undetectable for the last 25 months. I’m just telling you this because Abbie has some very serious side effects. Some people get extreme fatigue with it and need more prednisone. I know people that have been on Abbie for five years and not had real serious problems or side effects so the issues are very dependent on the person. It’s just known that Abbie is hard on the heart. One of those guys that was on it for five years and had very few problems ended up having open heart surgery after stopping it, was that the cause?, No one knows.
Connect
Connect
Like
Helpful
Hug
@jeffmarc
When known you have BRCA2 how does this affect future treatments? Wondering about testing for this since there is family history.
@risa6069
At this point future treatment means I can be on a PARP Inhibitor when what I’m currently on (Orgovyx and Nubeqa) Stop working.
After that Pluvicto Would be a good move because it’s supposed to work better for people that have BRCA.
There are some new clinical trials going on testing people with PARP and Zytiga To try to stop the cancer sooner. I don’t know about how it will work, but it is trying to come up with a better answer.
The problem with a PARP inhibitor is that they caused a lot of problems with blood counts. White blood cells, red blood cells and platelets are affected quite a bit and can results in needing blood transfusions to continue the treatment.
You could get genetic testing to find out if it could be a factor. Does anybody else in your family have cancer? You can get it here for free, takes 2 to 3 weeks to get the results and a genetic counselor will call you. They will send you a kit that you return in the mail. You have to live in the USA to get this test for free.
Prostatecancerpromise.org
Don’t check the box that you want to have your doctor involved or it will greatly delay the test.
-
Like -
Helpful -
Hug
2 Reactions@jeffmarc
Thanks Jeff for detailed answer. Yes father and brother history of pc. I am in NZ where you can also get tested for genetics with doc referal, for free. Thought it might be a good idea in case further treatment needed at some point. Currently just 9 weeks post RARP and undetectable so far!
-
Like -
Helpful -
Hug
1 Reaction@risa6069
My father died of prostate cancer. My brother got it at 77 after six years of active surveillance.
I got it at 62 and got BRCA2 from my mother. My father didn’t have it and my brother doesn’t have it.
You should get your genetics tested, but that may not be a factor.
Your father having PC doubles the chance of you and your brother having it.
3 1/2 years after my surgery, my cancer came back.
-
Like -
Helpful -
Hug
1 ReactionI had the same problem 4 months ago. I had three doctors giving me three different approaches. I'm 74 and opted out of the surgery based upon my Oncologist not seeing any body of evidence indicating a better outcome with surgery compared to doing Radiation x 20 and Lupron ans Abiraterone for two years. I would get as many qualified opinions as possible based on your individual cancer type and any other medical condions or health risks. I finished my radiation and I've been on the mentioned meds + prednisone for 2 months. I had a 10 something psa now it's barely detectable. Hope that helps some. Surgeons like to cut, Radiologist like to radiate and Oncologists like to medicate. I wish you well in your decision making.
-
Like -
Helpful -
Hug
4 Reactions@jake7777
At your age, that’s usually a good decision. I was diagnosed at 62 and had surgery when it came back 3 1/2 years later I was able to have radiation. I’m still here at 78 and I’ve been undetectable for the last 25 months. It’s probably going to come back since I have BRCA2 a genetic problem that causes the cancer to keep reoccurring. My brother had radiation at 77 and he’s now 80 and doing fine, No genetic issues.
11 years after I was diagnosed, I went on ADT plus abiraterone. Before, then, I never had high blood pressure, Abbie Gave me high blood pressure, which I still have five years later. Keep an eye on your blood pressure. It also caused me to have multiple Afib Events and 2 1/2 years after I started taking it I had one that was real major and my oncologist said no more Abbie. I switched to Darolutamide And have been undetectable for the last 25 months. I’m just telling you this because Abbie has some very serious side effects. Some people get extreme fatigue with it and need more prednisone. I know people that have been on Abbie for five years and not had real serious problems or side effects so the issues are very dependent on the person. It’s just known that Abbie is hard on the heart. One of those guys that was on it for five years and had very few problems ended up having open heart surgery after stopping it, was that the cause?, No one knows.
-
Like -
Helpful -
Hug
4 Reactions