Tymlos success?

I was diagnosed in 2023 with severe osteoporosis and a spine score of -5.3. After 2 years of Tymlos, my dexa scan lowered to -2.7. Side effects were minimal after the 1st injection - I injected in the evening, walked around the house for about 15 minutes to prevent back muscle soreness, then relaxed for 15 minutes to lower my slightly related heart rate. For the past 14 months I did strength/ mobility training and pilates weekly. I increased daily protein intake to about 110 grams for 1,800 calories. I am ecstatic with the results. I have decided to follow my endocrinologist recommendation and start Prolia for 2 years and then reclast.

In 7 months, my spine went from -3.1 to -2.1. Yay! It works!

@mamabear77 hi there. I recently read about a supplement called mbp (milk basic protein). It's supposed to promote bone density and the studies seem promising. Obviously, it's not going to be as effective as drugs, but it may be a good option if you can't or choose not to take medication.

@norahguil

I do not, but mine is covered. It puts me in the catastrophic category, no deductible.....for now anyway. It was the treatment recommended by my doctor. I am allowed a DEXA SCAN once every two years, but with the doctors request for annual scans to monitor progress, they are covered also. I had six breaks in three months. I'd imagine my doctor would have intervened had insurance questioned it. If this is what you mean by criteria??

Hi,
Thanks for your reply. I need to be clear as to what conditions one needs to meet to get Tymlos. I have also heard about Jubbonti which is a new osteoporosis medication out now.

@robert2025 why can't you stay on Tymlos? Is it because the it was only tested for a few years?

I am only at my 6 month point with Tymlos.At my last checkup my provider discouraged getting a Dexa as she said in some cases it may show a paradoxical effect.I don"t seem to have any side effects except "belly fat" which is a price I'm willing to pay.At 69 I don't plan on any swimsuit competitions though I hope it stabilizes & goes away after my remaining 18 months.I am hopeful that the Medicare coverage continues with so many changes after the new year.The best news is that I have been able to have three oral extractions & three dental implants .I did receive Reclast twice ,last in July of 2023 & some oral surgeons would not consider me because of the osteonecrosis risk.

@gowalking

That is wonderful!! So glad you were able to stay with it.
My doctor said the same thing. TYMLOS is now his most recommended choice.

I finished my two years in March, 2026 and just had a RECLAST infusion to lock in the gains from TYMLOS.
I wont have a DEXA SCAN until October, 2026, but I feel confident that my bones have continued to improve in the second year of TYMLOS.

I had no side effects and was able to take it with no issues at all. At first, the thought of two years was overwhelming, but you are right, it went by quickly.

So happy it worked for you. What treatment are you doing now?

@hdeff I read about MBP too. I would like to try this route (plus exercise, etc.) before drugs; Tymlos was recommended by my bone specialist; I am considering it but I fear the side-effects.
I researched a bit on MBP. I have not found MBP in the US markets. I did find a site intended for US corps to contact a Japanese (where MBP is certified as a food substance and used by many with OP) firm. MBP is derived from whey protein. The Japanese firm does not sell to individuals. I can provide more info later if someone is interested (not handy at the moment). Has anyone else found a distributor of MBP? MBP contains two "ases" (such as lactase but the names escape me) that may be found in whey based protein powders. I have not found a protein powder in the US market that specifically had the two "ases" sited by the Japanese marketer. And from the research articles I read the ratio of the two ases is important. I will update if I find out more. Maybe this conversation needs to be in a new thread on MBP - or OP diet?