Tymlos success?
Hello. I am only 47 and got diagnosed with severe osteoporosis three years ago. T score in the spine is -4.1. I started these injections seven months ago. I was wondering if anyone had any success with this being effective enough to go to osteopenia?
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I was diagnosed in 2023 with severe osteoporosis and a spine score of -5.3. After 2 years of Tymlos, my dexa scan lowered to -2.7. Side effects were minimal after the 1st injection - I injected in the evening, walked around the house for about 15 minutes to prevent back muscle soreness, then relaxed for 15 minutes to lower my slightly related heart rate. For the past 14 months I did strength/ mobility training and pilates weekly. I increased daily protein intake to about 110 grams for 1,800 calories. I am ecstatic with the results. I have decided to follow my endocrinologist recommendation and start Prolia for 2 years and then reclast.
In 7 months, my spine went from -3.1 to -2.1. Yay! It works!
@mamabear77 hi there. I recently read about a supplement called mbp (milk basic protein). It's supposed to promote bone density and the studies seem promising. Obviously, it's not going to be as effective as drugs, but it may be a good option if you can't or choose not to take medication.
@norahguil
I do not, but mine is covered. It puts me in the catastrophic category, no deductible.....for now anyway. It was the treatment recommended by my doctor. I am allowed a DEXA SCAN once every two years, but with the doctors request for annual scans to monitor progress, they are covered also. I had six breaks in three months. I'd imagine my doctor would have intervened had insurance questioned it. If this is what you mean by criteria??
Hi,
Thanks for your reply. I need to be clear as to what conditions one needs to meet to get Tymlos. I have also heard about Jubbonti which is a new osteoporosis medication out now.
@robert2025 why can't you stay on Tymlos? Is it because the it was only tested for a few years?
I am only at my 6 month point with Tymlos.At my last checkup my provider discouraged getting a Dexa as she said in some cases it may show a paradoxical effect.I don"t seem to have any side effects except "belly fat" which is a price I'm willing to pay.At 69 I don't plan on any swimsuit competitions though I hope it stabilizes & goes away after my remaining 18 months.I am hopeful that the Medicare coverage continues with so many changes after the new year.The best news is that I have been able to have three oral extractions & three dental implants .I did receive Reclast twice ,last in July of 2023 & some oral surgeons would not consider me because of the osteonecrosis risk.
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