← Return to Diagnosed polycythemia vera at 26: Any young PV patients out there?

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Profile picture for irishnanny3 @irishnanny3

Really understand d that being diagnosed so young is scary
Please don’t think that you are going to die. There are multiple meds that can control your OV. Mine is hydroxyurea and I needed only two phlebotomies when I was first diagnosed
After that only the hydroxyurea
(8 years, so far) has kept my numbers stable. I’m old, and I
haven’t lost energy. My Hemotologist sees me and does bloodwork every three months
Sending you positive thoughts and prayers.

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Replies to "Really understand d that being diagnosed so young is scary Please don’t think that you are..."

@irishnanny3 thank you very much. I was told the outlook was 14 to 20 years with treatment but I have been told given my age and early detectiction I will live a normal life as long as I complete my treatments. I am praying this is the case. Thank you again