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Diagnosed polycythemia vera at 26: Any young PV patients out there?
Blood Cancers & Disorders | Last Active: Jan 1 10:39am | Replies (44)Comment receiving replies
@eloise999 Why would you push her to go for a bone marrow biopsy? She stated that she can’t afford the current methods and that she is afraid of needles. If she tests Positive for the JAK2 gene she can be diagnosed soley by that and her labs. Her treatment will be the same. She needs some
Moral support and I hope she can find someone her age to help or she can get it here from us. I’m 59 and diagnosed with PV three years ago. She can ask me anything and I will be honest. If her doctor has any bigger concerns and wants to do the bone marrow test, then she can discuss it, but she needs to know that her treatment will be the same for PV with or without it.
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@nypara66 Hi! Thank you for your advice. Unfortunately I did not test positive for Jak2 so I am going to have to get a biopsy, I go back in January to schedule that and check my RBC levels again 🙁 I honestly think the biopsy is going to be the worst part, did you have one? Ive read online that its short and painful , but not unbearable. Im getting used to giving blood. I used to pass out at the sight of needles but after having to give blood 4 times in 3 months I've become a pro. Thank you so much again.