I'm so sorry that you are dealing with such an awful situation! That must be very hard on you! And yet, you seem to be coping admirably with it! You are taking things into your own hands with all of your research. That's fantastic! That's not being combative. That's being sensible!

I took care of my husband who had lung cancer. He died in 2024. I also did a lot of research in his situation and found a lot of helpful issues for him that the doctors weren't mentioning. In fact, they often started turning to me for advice which made me wonder why we were paying them $700 a visit! My husband's situation wasn't as complicated as yours but the one thing that really helped him was prayer. God was there for both of us during a very terrible time in our lives. Thanks to God answering our prayers my husband lived 14 years with lung cancer before he died. He wasn't in that much pain until the last. It sounds like you need God too! You don't have to go to church to find God; although church is very nice. Just talk to God like he was your best friend and he is. After all, God made you and he can fix you! Besides, at this point what have you got to lose?

Have you inquired at your hospital to see if they have financial assistance available that would help with your expenses? Many hospitals do have that kind of assistance. Also the Mormon Church will help people financially too. So will other churches but I personally know about the Mormon Church because I'm a Mormon.

Read the side effects of all of your medications, vitamins and supplements to see if any of them could be causing any of your problems. That's how I identified some of my husband's problems. The doctors should have been telling us this information but they didn't.

Also analyze your diet. Try and avoid any food with preservatives and additives in it. That can cause physical problems. Most importantly, drink a lot of water. It really helps our body function and our bodies need all the help they can get; especially when they are ill.

Think of the positive side. You are only 35. That's young! Your body has the ability to fight harder at that age than mine does at age 79. Plus you have come to the right place for advice. The people on this forum are very knowledgable and kind. They were very supportive when my husband died.

I will say a prayer for you. With God, anything is possible.
I wish you the best.
Merry Christmas!
PML