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Living with lung cancer - Introduce yourself & come say hi
Lung Cancer | Last Active: Mar 28 9:04am | Replies (1142)Comment receiving replies
My name is Denise Stinson and and had surgery in September with MD Anderson to remove neural endocrine tumors for my lungs. The pathology report diagnosed me DIPNECH. I am looking for a specialist in this area. MD Anderson does not have anyone that specializes in DIPNECH . I was hoping to find a doctor at Mayo to help me with my diagnosis.
Replies to "My name is Denise Stinson and and had surgery in September with MD Anderson to remove..."
@dmpstinson, yes Mayo Clinic has specialists in NETs, specializing in DIPNECH. As @lls8000 mentioned, there is a support group dedicated to NETs. You may wish to see the DIPNECH-specific disussions. For example:
- New DIPNECH diagnosis, need advice on doctors https://connect.mayoclinic.org/discussion/new-dipnech-diagnosis-need-advice-on-doctors/
- Anyone living long-term with DIPNECH on lungs?https://connect.mayoclinic.org/discussion/carcinoid-dyptik-on-lungs-neuroendocrine-does-anyone-have/
See all: https://connect.mayoclinic.org/search/discussions/
Did you contact Mayo Clinic? How are you doing?
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Welcome Denise @dmpstinson, You can start the process of requesting an appointment at Mayo Clinic here: http://mayocl.in/1mtmR63
Mayo Clinic Connect does have a NET group, where others with DIPNECH can be found: https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/
I wish you well with your recovery from surgery.