Has anyone found a treatment that helps with peripheral neuropathy?
I suspect that everyone on this forum has been searching for a medication that helps their neuropathy and even though you no that all the internet claims are false we continue to waste hundreds of pounds. Desperation is a powerful force. Has any one been fortunate enough to find a genuine treatment. I just can’t believe that there are so many awful people who prey on our vulnerability and knowingly orchestrate such elaborate scams.
Interested in more discussions like this? Go to the Neuropathy Support Group.
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@maggie76 I had pain in my feet so have been using red light therapy for six years at home. The pain is gone but not the numbness.
I have just started taking B6 and Alpha Lipoic Acid and B12
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2 Reactions@joannehart
What do you do for red light therapy?
There are many devices on the market. It is important to buy one that is medical grade and made in the US. I chose foot and ankle pads made by HealthLight because it had good reviews. I use it for 20 minutes a day. It cost $1800.
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1 ReactionI agree,we all need to be careful and spend our hard earned dollars or pounds on false cures.
I am involved in a clinical trial for a drug that helps deal with the pain but not the numbness.
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2 ReactionsWe should not spend our money on false cures!
So far the trial drug doesn't seem to be doing anything to help with my symptoms, it's a blind study,so I my be receiving a placebo. I'll see how it goes and follow up.
Fred
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3 ReactionsI never heard of red light therapy. Where would I get it. I would like to
try it too
I have lipoic acid and B6 just dont always remember to take them
Thanks for the info.
@maggie76 You might want to scan through the following discussions to learn what others have shared about red light therapy.
-- Anyone tried using red light therapy?: https://connect.mayoclinic.org/discussion/anyone-tried-using-red-light-therapy/
-- Has anyone tried infrared or red light therapy to relieve neuropathy:
https://connect.mayoclinic.org/discussion/has-anyone-tried-infrared-or-red-light-therapy-to-relieve-neuropathy-p/
-- Medical grade red light therapy: https://connect.mayoclinic.org/discussion/medical-grade-red-light-therapy/
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1 Reaction@maggie76 scan the articles that the mentor John has suggested below
@sron1904 Sure! I am getting improvement. I just had another evaluation, and my "numbers" are a bit better. So, just to be clear, I did not (yet) have pain from PN, just numbness, tingling, and consistently COLD feet.
I start every morning, about 7 AM, with coffee and:
the VASOPRO nitric oxide supplement once a day. I mix it in about 8 oz. of orange juice
I use the REBUILDER electro-therapy machine once a day, although I don't use the foot bath, I bought the "pads" that I spray with the electrolyte before use. (30 minutes)
I then use the red light therapy "boot". (20 min each).
I then use the Moma Bear Neuropathy cream, and put my shoes on.
It's working for me! Before I started, my entire foot would feel cold, and numb Now it has regressed to only being my toes that feel numb and tingle, and it's only about noon that it starts.
I use the cream again before going to bed.
I think that, maybe, I caught it early enough that the nerves are in fact healing. They initially rated me at 45-55% damage. Now I am at 28%. I know that this is subjective, but I do know that the thermal images they are taking are correct, because I have my own FLIR camera at home which agrees with the images they take.
I don't know what else to report, if you have specific questions I'll be happy the try and answer them. I also started taking a magnesium citrate supplement. I would like to get off of the statin that I take, 40mg per day, but after discussions with my doctor, we think it better to have PN symptoms that a heart attack. Meaning, there is not as much documented correlation between statins and PN, as studies between taking statins and heart disease.
@mike1041
I wondered if you have your own FLIR to assess nerve damage or do you go to a clinic etc?? I’d like to find out more about using FLIR for evaluation purposes?
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