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Mysterious shortness of breath: What has helped you?
Lung Health | Last Active: 4 hours ago | Replies (3676)Comment receiving replies
I have been suffering from undiagnosed dyspnea for 4 or 5 years years now.
My battery of test reveal: no sleep apnea, no severe allergies, good lung function, and an unrestricted airway.
My heart function is normal, a stent was placed in a coronary artery a couple years ago,
It seems that I have had every test under the sun and am "normal" except for my air hunger.
Long Covid may be a possibility. I was very sick shortly before Covid came on the national radar and understand the test for previous Covid infection can not be performed after Covid shots. (yippee, huh?)
I have been to OHSU twice and Stanford medical once with no insight as to what may be wrong.
Thanks in advance for any input!
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@jasparhunter
I’m really sorry you’re dealing with this. That “everything looks normal but I still can’t breathe right” situation is incredibly frustrating, especially after years of tests and trips to places like OHSU and Stanford. Many of us here know that feeling all too well.
The fact that your oxygen levels are always good and that oxygen, inhalers, and steroids don’t help is something I hear often with air hunger. That was my experience too, and it’s confusing when the numbers look great but the sensation is anything but.
The possible long-COVID link is interesting, especially with the timing you mentioned. Did your breathing symptoms start pretty suddenly after that illness, or did they come on more gradually? And have you noticed anything that reliably makes things better or worse, like stress, posture, or gentle exercise?
Thanks for sharing your story. You’re definitely not alone here, even though it can feel that way.