Colostomy: I hate this thing!

Posted by coloncutter @coloncutter, Apr 24 3:59pm

Does anybody else think that having a colostomy bag is worse then spending time in prison. I hate this thing

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Profile picture for rioa21 @rioa21

My colostomy has given me back my life! I was miserable before. All my time was spent looking for a bathroom or being in one. I suffered horribly from fecal incontinence due to radiation treatment for anal cancer. I am extremely grateful that the option of having a colostomy even exists!

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@rioa21 As they say “you da man”

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Profile picture for annpeters @annpeters

Rioa, i’m so happy to hear this. I have Colitis. I am electing to have my colon removed because I can’t do the cleanup anymore. I have frequent and urgent incontinence. I’m almost 70 and have tried biologics which were horrible. My appointment to even see the surgeon is not until November. I’m from Canada and we have long waitlists and limited doctors. It’s a big decision so your post is good news. I’m wondering if you have a pouch or a J pouch and if you have leak issues? Or skin issues? All the best to you!

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@annpeters I have a double barrel ostomy. My ostomy has 2 openings. One for stool and one for mucus. Ok still have a rectum. I wear a closed end bag. I change everything almost daily. I’ve only had a few leaks in over 2 years. I am constantly checking for signs of leakage and change the bag as soon as it has anything in it. My skin has been very good. I don’t use many products. I keep it as simple as possible.I don’t use any special soap and I use wet wipes to clean up. I’ve been using Hollister products and have been happy with them. I put extender strips around the flange fort extra protection. I really think they’re helpful.

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