Has anyone found a treatment that helps with peripheral neuropathy?

Posted by bigjohnscho @bigjohnscho, Jul 1 10:27am

I suspect that everyone on this forum has been searching for a medication that helps their neuropathy and even though you no that all the internet claims are false we continue to waste hundreds of pounds. Desperation is a powerful force. Has any one been fortunate enough to find a genuine treatment. I just can’t believe that there are so many awful people who prey on our vulnerability and knowingly orchestrate such elaborate scams.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Although it takes many months to show improvement, definitely Sanexas treatments have helped me. When treatments don't happen for a month, am noticing definitely a return of the neuropathy.

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Profile picture for faybe @faybe

I take Alpha Lipoid Acid. It is the same thing that is in the over the counter meds for nerves, but it is stronger. I take 600mg now. I get it at amazon, Walmart also has it, but it is not as strong. you can increase the strength any time and it does not bother you. Be sure to take with food. It might make your stomach burn a little, but you can rinse it down with water or eat. It is cheaper than the nerve meds over the counter.
The problem I have is that I feel like I have socks on. It is so weird. Don't like the feeling and I can't get rid of it. Does anyone else have this problem? God Bless yall. Fay

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@faybe
I am having success with Stonehenge's Dynamic Nerve. I take 3 pills a day. It is expensive though. I am able to sleep most nights. I also find that I need to apply ice packs over the top of my feet to quiet the pain some nights before I go to bed, and some nights need to keep the ice on to fall asleep.
Has anyone else tried this method?
Dan

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@db72 I have been taking LDN 4.5 mg in the morning and 400 mg of gabapentin at bedtime for quite some time now

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I can only share what helped me. I had multiple health issues with the neuropathy being one of the first 9 years ago. I started walking regularly even though it was painful. I was so afraid of it getting worse....Took some time but I don't have the pain anymore. If Im lazy or sick for a week I can feel it coming back. I take Vitamin B12 also. With my other stomach/ digestion /immune issues I've been on a diet and lost 60 pounds. So it was probably a combination. But I believe the walking helped the most as I was still heavy when it started to go away I wish you all of the best and hope you feel better soon.

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Profile picture for Skywatcher @lindabyrne38

I can only share what helped me. I had multiple health issues with the neuropathy being one of the first 9 years ago. I started walking regularly even though it was painful. I was so afraid of it getting worse....Took some time but I don't have the pain anymore. If Im lazy or sick for a week I can feel it coming back. I take Vitamin B12 also. With my other stomach/ digestion /immune issues I've been on a diet and lost 60 pounds. So it was probably a combination. But I believe the walking helped the most as I was still heavy when it started to go away I wish you all of the best and hope you feel better soon.

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@lindabyrne38 I would love to walk but have many back issues as well as leg and foot neurophy. I take B12 as well as lots of other vitamins
I'm taking 2 Calcium Citrate a day and the pain in the legs has lessened, but not in my feet.
My feet are painful which makes it harder to walk.

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Since suffering from trigeminal neuralgia, I learned via internet that our nerves loose insulating fat( myelin) . Then there is pain. I now take METHYLCOBALAMIN ( B12) to recoat my nerves.Alcohol slows absorption of B12

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I have been suffering from Chemo Induced Neuropathy for the past 8 years, have been prescribed all the well known medications, but am now on Tapentadole 100 mg and Sifrol 125 mg taken prior to bedtime. They give some relief how ever it feels like I need to be on a higher dose, as where the neuropathy only really effected me later in the day and night time, I am starting to suffer when waking up in the mornings, or during the day.
Anyone had any success with newer medications ? or any new ideas ?.

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Profile picture for mariegroh @mariegroh

@cit10jetjockey several legit studies prove that there is relief from pain via FULL BODY RED LIGHT therapy and also vibration plates in a very specific way, length and number of minutes.

Power Plate seems to be the best vibration for neuropathy.

I''ve done 28 sessions of full body infrared and nearinfrared sessions at LIGHTLOUNGE (the one near me but there are facilities in many cities and states and you can find one near you perhaps: http://www.lightlounge.life.

My doctor told me there was no cure just treatment and of course the dreaded prescription meds that I simply WILL NOT TAKE NO MATTER WHAT..

I now have many hours with no pain and even full days with no pain. I did a lot of research and have found that an every other day schedule works well for me.

Lightlounge has a charter member program that gives you access before or after hours as well as during the staffed hours. I LOVE going at those times. I let myself in with the door lock app. I check myself in. go to the assigned room, lock the door, remove all my clothes (your skin needs direct contact with the lights. Select my program from all the ones available (I started with just the inflammation program for about 6 weeks because inflammation is at the root of most things that go wrong in our bodies! and now I just do the program for neuropathy) I Put on my little protective eye covers because the neuropathy program includes a strobe/flashing light session that addresses certain aspects.

Studies have also shown that red light therapy has caused the beginning of nerve repair and even regeneration.

It also helps your skin and may even help with hair growth and sleep.

I can comfortably say that after nearly 30 sessions I highly recommend it IF YOU DO YOUR RESEARCH and CAREFULLY SELECT your sessions using the no sooner than 24 hours after your last one and preferably 48 to 72 hours. Your cells need time to process the sessions, like muscles need time to process after a weight lifting session. If you go to the gym and do your legs you don't do legs the next day. You wait at least 3 or 4 days before doing legs again if you want to see muscle improvement. Same with red light and your cells. My improvement has increased since I started the every other day routine.

You can private message me if you have questions.

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@mariegroh would you be able to share more about your experience with alternative neuropathy treatments?

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Profile picture for mike1041 @mike1041

I respectfully disagree. I am getting substantially reduced symptoms using the "Blueprint for Neuropathy" system.

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@mike1041 would you please help share more about your experience with blueprint for neuropathy?

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Profile picture for ambroseplace4 @ambroseplace4

I have been suffering from Chemo Induced Neuropathy for the past 8 years, have been prescribed all the well known medications, but am now on Tapentadole 100 mg and Sifrol 125 mg taken prior to bedtime. They give some relief how ever it feels like I need to be on a higher dose, as where the neuropathy only really effected me later in the day and night time, I am starting to suffer when waking up in the mornings, or during the day.
Anyone had any success with newer medications ? or any new ideas ?.

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Welcome @ambroseplace4, Sorry to hear you are not getting much relief from your current treatment. You might find the following discussion helpful while you wait for other members to respond.
-- Chemotherapy-induced neuropathy: What helps get rid of it?
https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy/
Have you talked to your doctor to see if they may have suggestions or alternatives to your current treatment to help with the pain?

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